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  1. Kalliope

    Gary Burgess - The ME show, and updates about Gary's health.

    A dark episode in medical history, according to dr. Speight. So true. Thanks for yet another very interesting episode, @Gary Burgess I really enjoy your podcast!
  2. Kalliope

    Star Advertiser: Is chronic fatigue syndrome real? [Dr Oz claiming that there is a test for ME/CFS]

    The affliction usually affects folks age 40 to 60, most often women and Caucasians. (my bold) Is that true? As far as I know this has not been looked in to that much. I only know of Leonard Jason et als "The prevalence of Chronic Fatigue Syndrome in Nigeria" (2007) which showed the prevalence...
  3. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Pleasantly surprised today by a rather good article about this study on a news site about research. The journalist has written about ME before and she's done her research before publishing the article. The lead author of this study, psychiatrist Bjarte Stubhaug is interviewed. So are the...
  4. Kalliope

    Daily Telegraph: Living hell or yuppie flu? The confusing fog of chronic fatigue syndrome

    What would happen, I want to know, if he just started forcing himself to do more, to gradually increase his levels of physical activity. This is where he hears the words of the CFS hardcore, who tell sufferers to be very careful not to exacerbate the condition. Duerden says he recently saw a...
  5. Kalliope

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    I think I prefer "user" from "consumer". Particularly after the Research Council of Norway's pilot project on user identified needs in ME research. Clinicians were included too in the term together with patients, as they as well are users of the research. I liked that definition. Excellent...
  6. Kalliope

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    Welcome to the forum, @Diane O'Leary Thank you for your paper and for joining in on the discussion about it here. Very interesting.
  7. Kalliope

    News from Scandinavia

    The Norwegian ME Association has a short survey about ME and illness progression. Anyone in Norway with ME, who has had ME or is under assessment for ME are invited to participate. More information and link to survey: Norges ME-forening - Spørreundersøkelse om sykdomsforløp
  8. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Radio host: Who can be helped? Stubhaug: Everyone, basically. Everyone referred to us are in principle received. Then we look at what is the problem and the symptoms and then.. depending on whether people are willing to participate. It is in many ways a very simple treatment, but on the other...
  9. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Last Wednesday there was a radio interview here in Norway with leader of the national competence service for CFS/ME and with Bjarte Stubhaug. NRK Frokostradio Here's a summary First guest was Ingrid Helland, leader of the national competence service for CFS/ME. She said we don't know the...
  10. Kalliope

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    HRA Report Does Not Vindicate PACE Last week, I reported that Bristol University had launched an independent investigation of research led by Professor Esther Crawley, at the request of the the UK Health Research Authority. Today, the HRA released a report on the PACE trial that has portrayed...
  11. Kalliope

    David Tuller in Helsinki

    I don't speak a word of Finnish, but I believe this says that Mika Niiko, a member of the Finnish Parliament, has reported a doctor to the police for refusing to assess and help a severe ME patient. ETA: Facebook translation of the post from Mika Niiko that came with the video I made a report...
  12. Kalliope

    Concerns about Cochrane

    Peter Gøtzsche has now published a book: Death of a whistleblower and Cochrane's moral collapse
  13. Kalliope

    Trial By Error: Bristol Investigating Crawley Papers

    New blog post from David Tuller: A Recap of the School Absence Study Last week I broke the news that Bristol University is conducting an independent investigation of a number of studies that were exempted from ethical review on the grounds that they qualified as “service evaluation.” Because...
  14. Kalliope

    UK Parliamentary debate today - Thursday 24th January 2019

    The Parliamentary debate was mentioned in a critical news article from Norway about a mindfulness/CBT-study claiming to improve 80% of ME patients. Short recap of article and link to google translation here
  15. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Big, critical news article about this study. TV2: ME-pasienter raser etter "sensasjonell" studie google translation: ME patients rage after "sensational" study The article presents the study and the enthusiastic media coverage in Norway. Sissel Sunde has ME and has undergone Stubhaug's...
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