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More Thoughts on the Interferon Study I was surprised recently when the UK press made a big splash about what was, in the end, a modest study from a team led by Carmine Pariante, a professor of psychiatry at Kings College London. I was less surprised when I realized that the Science Media...

If anyone wants to comment on the article and give their support for the petition and Nina, they can do so on Twitter and Facebook here:

Article in the regional newspaper Bergens Tidende about the petition. It is paywalled, but here's a translation from most of the article: ME-patients revolting against professionals Is ME in the mind or in the body? That's the core of the debate surrounding the condition at least 5 000...

My Letter to LP Study's Senior Author I e-mailed the following letter to Professor Montgomery on Sunday evening (California time), with the subject heading “Retrospective Registration and Outcome-Swapping in Lightning Process Trial.” I cc’d Dr Nick Brown, editor-in-chief of Archives of Disease...

ME is another possible diagnosis which has been discussed about Darwin. Guess we'll never know. I read he tried among other cold, outdoor showers. Don't know if they were helpful for him.

My bold and a huge sigh :facepalm: Hope for people with mysterious and debilitating tick bite symptoms The Morrison government has committed $3 million for two studies over five years that will investigate the nature, prevalence and causes of these symptoms to demystify the problem and develop...

Cochrane members for change The first 100 days, a personal account - Jos Verbeek It is difficult to say what if anything is different now. Thanks to the support of many Cochrane members, it seems that business will not be continued as usual. That is an achievement. Also many people did not...

One new thing I learned from the chapter on PACE in Psychology in Crisis, is that not only was the PACE trial the largest trial so far within CFS/ME, but also one of the largest within psychology, which is a much more established research field. That was a surprise to me.

Who could do that? I'm too brain foggy to do it myself, but may contribute in a group. Anyone?

Kristine tells her story about being a severe ME patient to a street magazine called =Oslo. Jeg møtte et sykt mørke google translation: I met a sick darkness Then I was admitted to Rikshospitalet for assessment. Mom had told them how little I could handle. Yet they pushed me to take...

The Norwegian public broadcaster NRK has an entertainment programme called "What's wrong with you?" where a team of doctors compete with non-MDs with access to Google on guessing patient's diagnoses. It's a popular programme as well as educational. In yesterday's program one of the patients...

I thought the last paragraph here was interesting. BMJ: Elizabeth Loder, head of research - Pledges for the new year As for The BMJ, our New Year’s pledge is an extension of our commitment to open science and involvement of patients and the public in all stages of the research enterprise...

A few more weird things. Why would one present themes as perfectionism and overachievement if the patients didn't bring it up themselves? How many ME-patients can manage a four day program from 9.am to 3-5 p.m (I had no idea it was that much) and does the paper reveal that the only therapist...

under Education A coping model with focus on stress expectation, positive outcome expectancy and active regulation of health complaints and symptoms was introduced (50). We tried to communicate clearly that regardless of causes, regulation of symptoms and change might be possible. However, a...

I thought things were better than this :( “If he knew African-Americans as colleagues at all levels, his present view would be impossible to sustain,’’ Dr. King said. If that is the case, it may not bode well for combating prejudice in biomedical research, where African-Americans represent...

Thank you @Trish for going through it and raising several good and valid points! I don't understand how Stubhaug can publish a trial which is basically an evaluation done by himself of his center and the treatment he offers, without declaring any conflicts of interest. This is a privately run...