Search results

  1. large donner

    Cochrane ME/CFS GET review temporarily withdrawn

    Perhaps this reads more that, currently the review does not stand, as it is subject to a complaint and that the authors now have to do a submission to that complaint in the form of a new review that will ONLY be published if Cochrane decide it answers the critiques adequately. Very hard to...
  2. large donner

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I know they have decided to review the guidelines but I'm not sure they are being open about the process of "updating" the guidelines. They have nothing to add to the current guidelines therefore are being very guarded about what they are actually running this process for. If its just to...
  3. large donner

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    The main question I had still remains: Who gets to decide on the whether the NICE guidelines changes or stays? Is it this appointed committee or is this committee just here to evaluate evidence for others within NICE to decide? What is the full defined motion being decided/voted on?
  4. large donner

    Cochrane ME/CFS GET review temporarily withdrawn

    It totally depends how big the hitters are that get pulled in for the BPS crowd, that we already know has suited government policy. Also how many favours they think they can chuck Cochranes way. What kind of deals they can do. We don't even know that stuff wont go on behind the scenes involving...
  5. large donner

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Can anyone explain exactly how this is going to happen. Is it a straight forward invite 13 or 15 or so people onto a committee and each person gets to vote whether or not to change the guidelines or not? Will each person get to present evidence for and against? What other evidence will be...
  6. large donner

    PACE Trial application to MRC for funding in 2002

    Laughable! The bias is introduced into pacing by not having a biased therapist seeking to influence the way someone responds to their questions when that's the whole point of behavioural intervention? Why the hell call it the PACE trial if you dont use pacing as practised by patients. Surely...
  7. large donner

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    How do you expect them to be develop an interest in science and dragged away from the Kardashians and Love Island if science isn't dumbed down hocus pocus vodoo?
  8. large donner

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Sorry to say it but the petition was a stupid idea and this outcome played right into their hands and is inevitable. They will now try to give more controversial talks in high profile institutions just to troll us and will be aiming to have further "protests against academic freedom". Making a...
  9. large donner

    Cochrane ME/CFS GET review temporarily withdrawn

    Ah ha, you are from Yorkshire? That explains alot.
  10. large donner

    Cochrane ME/CFS GET review temporarily withdrawn

    Interesting Clare do you have a dog in this fight? Are you declaring a COI in your tweets. Patients COI? Laughable! When the DWP helps to fund a study aimed at reducing benefits of sick people and those sick people point out flaws in the study often from their beds with no funding, just pen...
  11. large donner

    Cochrane ME/CFS GET review temporarily withdrawn

    Its still irrelevant anyway, this is about junk science. We didn't produce the science from the people who have had it withdrawn from the Cochrane review. Others did, then because other scientists including patients showed their data to be flawed leading to flawed conclusions, conclusions that...
  12. large donner

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I thought NICE had said that they would only consider independent people for this review?
  13. large donner

    NICE guidelines: Final scope and equality impact assessment published

    'Heres all the sourced proofs that large numbers recover from our treatments.' 'I see, are these studies all subjective endpoints, non blinded, carried out by the same people with dubious criteria, hidden data, changed protocols changed recovery definitions, whereby objective outcomes are...
  14. large donner

    NICE guidelines: Final scope and equality impact assessment published

    One of the things that is fundamentally flawed in modern science is claims like 'xyz is used in MS successfully'. This kind of statement is an appeal to authority and can build an even higher house of cards. Without examining every basic premise a slight of hand can be performed. People like...
  15. large donner

    NICE guidelines: Final scope and equality impact assessment published

    Some?!!! Almost four decades of this shit and they still dont understand that the onus is on them to prove the treatments SCIENTIFICALLY. They have failed to do so and have sat by promoting junk science. Why have you ignored them for decades then? If that does happen the emperor will be...
  16. large donner

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    We have all been on these forums for a number of years now and shared all our experiences of useless doctors, scientists and academics. They are numerous and often seem to be the majority rather than the minority. I simply don't trust the medical profession to diagnose anything now that needs...
  17. large donner

    UK CMRC 2018 Conference Rachel French

    I don't think Rachel. How about just leaving it there.
  18. large donner

    David Tuller: Trial By Error: My Latest Letter to Archives of Disease in Childhood

    Thats why they are so desperate to "regulate" the internet.
Back
Top Bottom