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I was thinking about that earlier, but surely by now with all the obvious critiques Sharpe must get it. He is the one afteral who keeps telling people to read papers. Maybe he is just easy to goad and cant stay off twitter just like Trump. Maybe he thinks it doesn't matter what the truth is, he...

The BPS crowd don't have a very good record in court, please see QMUL, Trudy Chalder etc. Bring on the libel claim.....try to jump out of the way when you shoot your own foot Mr Sharpe.

Who failed this test then Mr Sharpe?

£5 million from the public purse including the DWP donation didn't prevent you producing crap science mate.

AfME or any other charity doesn't necessarily have to be conflicted via any potential government donations directly. The issue of the revolving door is one that is often looked at in commercial industries for example and perhaps even more so in charities whereby influential people in the...

It seems so weird in that case that they are not treating MS, Motor neuron disease, Parkinsons, Huntingtons disease and sharing all their treatments with the world. I'm confused how such treatments would only help neurological illnesses that haven't been diagnosed and only help people with...

The title head of communication sounds very corporate though and often such positions employ a skilled PR person to advise on what to say what not to say, when to shut up etc, and often they are actually the controlling factor in the brand. That's why I went into whether its a paid position or...

Well i dont disagree with most of what you said there but thats my whole point, almost. I am just directing questions at AfME regarding how they got to their current position on the PACE trial. AfME is a waste of space but I dont automatically excuse people because 'they are just doing their...

I dont think its worth starting a new thread because if you want to get to the bottom of 'what is AfMEs current position on PACE' I think you wont get any further after Clares 'ongoing debate on PACE' comment without connecting the dots on the questions I have posed here on this thread and why...

@Sasha Sorry I just dont agree that we cant question Clare on her communications, whether she is paid or not and how much just because Sonia should be answering questions too. I think you are missing something here, I did not come here and tell you that Clare is the head of communications, SHE DID!

Fair enough but I AM talking about AfME and how much people get paid and who they are serving because they are bloody useless and all of us here do have an interest in ME and knowing why one of our charities is a waste of time and space, not just in the past but also right now as is seen from...

Its obvious they are good at not knowing the difference between ME and other things and claiming success in treating ME whilst telling some people they have or had ME. Anyone who doesnt recover from ME presumably isnt trying hard enough or doing the right thing.

To ascertain potential conflicts of interests in relation to who their main donors are and to understand why AfME are so bloody useless. There must be a reason why they are. If AfME cannot publicly denounce Crawley, as one example, I want to know how much money is being wasted on paying...

Sometimes one asks questions to record them going unanswered on the public record, or not. The next obvious question is, who funds you?

Well he didn't say they did anything else so what did they do as the NICE guidelines says you are only allowed to offer CBT and GET. What the fuck is central nervous system over arousal anyway? Since when was that published and proven as the cause of ME?

What was the name of the medication and why did you have to stay there for eight months if all the did was give you medicaton and what tests did they do to diagnose you with 'central nervous system over arousal'?

This thread has been split from What is Afme's current position on the PACE Trial?. Issues relating to AfME's staff, trustees and advisors and donors can be discussed here. Please keep the discussion civil and compliant with our forum's rules. @Action for M.E. Hi Clare do you have a paid...

@Action for M.E. Hi Clare can you ask Sonia why she doesn't enrol her son on an LP course? Esther Crawley has published evidence that it cures children. Alternatively she could speak out publicly and denounce Crawley as many other people have. She is the head of an ME charity afteral.

That was a drop the mic response to Groves. He should have signed off with, 'ya done now!'.

Yes ironic really, she was advising me on my diet and yet she died before me!