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Posting a link to this page from PrecisionLife given in the recent ME Genetics Centre of Excellence webinar. Not sure if there’s anything new but it brings together the various bits of info from the company. And has a report on the First Year Review of the LOCOME Project.

That’s definitely something I’m interested in.

Really interesting. Thanks for sharing and for the explanation. Theres a few of these posts I have on my ‘to listen to’ list.

I wondered about that too. PrecisionLife seem particularly focused on that aspect already, but beyond that? Even if they don’t already have ideas about treatments it seems sensible to start talking about the pipelines. Given I’m struggling at the moment after a good spell I’m keener than ever...

I looked for the Action for ME thread before posting this but couldn’t find it, and have now just seen it. Sorry, total brain fade! Please feel free to move his post as I can’t seem to delete it.

From AfME’s website: The full summary is worth a read to understand the purpose and who was there. Looks like a useful bit of bringing people together and networking.

After looking through the plan in more detail I wasn’t sure if we’d see all the steps outlined in section 6 (including things like PheWAS) or get the initial base GWAS results first then followups with the extra detail. It looks like there’s potentially a lot of different and interesting pieces...

Maybe there are mutliple groups I’m not sure. But fingenn is specifically mentioned and they seem to have generic data already, but I don’t know about this bit of the analysis. It could even be concurrent.

I’ve been re-listening to some older presentations on DecodeME and going through the analysis plan in more detail and trying to learn more about the processes involved to prepare my brain for whatever comes. Here’s a few thoughts, hey maybe interesting to others and maybe people with more...

Mine was by reading your post :) Very entertaining

On the one hand I do agree that experiencing awe and wonder has an impact on how we feel about things. I do agree that they are an important part of the human experience. And saying that is fine. Nice things are nice. The world is full of wonder. On the other hand I’m not sure what that’s got...

Do they sell services privately or are they focused on military personal? I’m not sure how it works in Belgium. But possibly because they’re a military hospital is why they care about rigour and results, that is they’re focused on finding effective treatments for personal.

Wrapping rehab in an app feels awfully like a rehash of the past. I haven’t been through this whole thread sorry, but thanks to those who’ve been digging into this. This approach may well be useful for some people who need this sort of support to recover from illnesses. How it helps change...

For me the question is, what would have more impact, changing the name or changing how people are seen and treated? Not that these things are a choice between those two, but sometimes I do wonder about where limited effort/resource/influence is expended and if failure to be able to change one...

So presumably we could find something like some people either having a different issue, or some low affinity antibodies which in behave a bit differently in some people with ME/CFS? This could be, in some people, downstream effects of what is really going on?

Good news. There’s so much that could be made more accessible. Which would work for people with many different conditions, and just convenience for others. And could even be cheaper to deliver! (I heard on a programme a little while back this is why there’s been an increase in at home things in...

Same, I had that exact pair then upgraded to the newer X series and they’re great, I now have X3A from a few years ago and X5A just bought https://www.3m.co.uk/3M/en_GB/p/d/b00037373/ https://www.3m.co.uk/3M/en_GB/p/d/b00037368/ I also tried some Bose noise cancelling headphones last week...

Lovely to hear @DMissa and I really enjoyed the talk. One of a number of great communicators and caring researchers we’re lucky to have. Looking forward to what comes out of the current project particularly in conjunction with all the other studies (obviously especially DecodeME). Pulling...

Should we consider the audience that isn’t deep into this? I wonder what someone unversed in all the history would make of this and if they’d grasp the point about things having been found but there being no reliable evidence for causal mechanisms? I suppose it depends on the target audience and...