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Good news, for a change :):thumbsup: Press release: Svenska Covidföreningen beviljas stöd till patienter med postcovid https://covidforeningen.se/svenska-covidforeningen-beviljas-stod-till-patienter-med-postcovid/ News article (audio, in Swedish, 2 minutes): Unga med postcovid ska få bättre...

I share this opinion (I'm from Yan's neighbouring country, with lots of cultural similarities).

Opinion piece on stress and exhaustion disorder, in one of Sweden's largest newspapers, by a group of researchers including Elin Lindsäter and Mats Lekander. ”Sluta använda begreppet stress om allt och alla” https://www.dn.se/debatt/sluta-anvanda-begreppet-stress-om-allt-och-alla/

An important update from the Swedish Covid Association: Goda nyheter om Hjärt-kärlmottagningen Karolinska https://covidforeningen.se/goda-nyheter-om-hjartkarlmottagningen-karolinska/ Thank you so much for all your hard work, Swedish Covid Association! :thumbsup: @MittEremltage comments on...

Suomen lääketieteellinen ME/CFS-yhdistys ry (the patient organisation Finnish Medical ME/CFS Association) on Facebook: "Tutkimusraportti on julkaistu 19.12.2024 ”Krooninen väsymysoireyhtymä (ME/CFS) on monimuotoinen pitkäaikaissairaus, jonka oireet voivat rajoittaa sairastuneiden henkilöiden...

Co-author Lisa Fazio on Bluesky: https://bsky.app/profile/lkfazio.bsky.social/post/3ldoifis25c26 "Our current information ecosystem makes it easy for misinformation about science to spread and harder for people to figure out what is scientifically accurate. We need proactive, multi-sector...

National Academies consensus report on Understanding and Addressing Misinformation About Science https://www.nationalacademies.org/our-work/understanding-and-addressing-misinformation-about-science "Our current information ecosystem makes it easier for misinformation about science to spread...

"045 - Can we filter ME/CFS and Long-COVID out of our blood (apheresis)? Two new pilot studies indicate that therapeutic apheresis may be helpful in controlling ME/CFS and Long-COVID symptoms. The published report can be found at...

Opinion piece in a local newspaper, by two politicians. ”Nya råden direkt skadliga för ME-patienter” https://www.barometern.se/2024-12-14/nya-raden-direkt-skadliga-for-me-patienter/

What about anecdotal evidence of great and permanent harm? I've seen the harm it can do to severely ill pwME who are pressured to undergo it, and how it has negatively affected life for decades after.

The Swedish Covid Association published a template/guide today (in Swedish) to help patients, who have been wrongly discharged, report it to the patient advisory committee (Patientnämnden). https://covidforeningen.se/utskriven-fran-hjarta-karl-karolinska/

Karolinska's info page on EECP (in Swedish): https://www.karolinska.se/vard/tema/tema-hjarta-karl-och-neuro/hjarta-och-karl/hjarta-karl-mottagning-huddinge/eecp-enhanced-external-counterpulsation-hjarta-karl-mottagning-huddinge/

Karolinska in Sweden is currently running an EECP clinical trial for long covid. Mekanisk perifer kompression (EECP)-behandling till patienter med postcovid symtom. https://www.karolinska.se/forskning-och-utbildning/kliniska-provningar/pagaende-kliniska-studier/eecplngtidscovid/

More bad news from Stockholm, which affects all of us since they are the only dysautonomia specialist clinic in Sweden. Not specifically about ME, but it is affecting many pwME. No official info yet, the Swedish Covid Assocation is looking into it. Here's a summary of what we currently know...

Bragée primary care clinic in Östermalm is closing down at the end of February 2025. https://www.bragee.se/bragee-huslakarmottagning-stanger-28-febr-2025

I would not recommend Omron to people who often have a very narrow pulse pressure. My Omron only works when I'm lying down, it refuses to give me a reading when my body is in an upright position (orthostatic blood pressure). Many others in the Swedish dysautonomia groups have noticed the same...

"043 - New paper published! Air quality affects pain and fatigue. Here is our new paper on air quality and chronic pain and fatigue. Just click the download button at: https://www.mdpi.com/1660-4601/21/12/1560 The real-time air quality map I used for this presentation can be found at...

"043 - New paper published! Air quality affects pain and fatigue. Here is our new paper on air quality and chronic pain and fatigue. Just click the download button at: https://www.mdpi.com/1660-4601/21/12/1560 The real-time air quality map I used for this presentation can be found at...

Region Östergötland is looking for participants for a research study that sounds very similar to the study discussed in this thread. And it says it's in collaboration with Stockholm University. Is it the same study, perhaps? (Maybe @MittEremltage knows?)...