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Dr Lucky Tran has posted a bit about this, mostly based on data in the US I believe. You can follow him on social media (Twitter, Instagram and/or BlueSky) for more info. Here's one of his posts on the topic: https://www.instagram.com/luckytran/p/C9BBypiOyK9/ Here's the source he links to in...

I don't know what he's doing now, but I believe he's currently about 96 years old? And yes, he's been very much appreciated by his patients and the ME community over the years.

There's a 5 part series of videos on YouTube, an interview with prof Gottfries from 2014. He talks about his reseach (but I can't remember any details at the moment, it's been so many years since I last watched it). Interview with Professor Carl-Gerhard Gottfries, Part 1: Background and Vaccine...

I agree with you, @forestglip. I'd love to see this explored and tested properly. A side note, there's a thread from 2015 on PR about the closing down of the Gottfries' clinic. I don't know the whole story myself, but it's very clear that the BPS lobby was doing everything they could to put...

Because the manufacturer of this particular vaccine stopped making it, supposedly (based on what I've been told by Gottfries' patients years ago).

"A new scientific paper shows impaired cognitive functioning in ME/CFS. While this will not be a surprise to anyone with the condition, the study helps us understand the nature and extent of the problem. You can find the open access full paper here...

"A new scientific paper shows impaired cognitive functioning in ME/CFS. While this will not be a surprise to anyone with the condition, the study helps us understand the nature and extent of the problem. You can find the open access full paper here...

:eek::wtf::(:grumpy::sick::arghh:

Socialstyrelsen underkänner WHO:s kunskapsunderlag om postcovid https://fof.se/artikel/socialstyrelsen-underkanner-whos-kunskapsunderlag-om-postcovid/

Blog article by Sara Riggare, expert patient, patient researcher and researcher at Uppsala university in Sweden. She lives with Parkinsons and has published on her own self-experiments :thumbsup: Patient self-experimentation makes the headlines...

(Not ME specific.) An opinion piece about AI and medical records. Worth a read :thumbsup: Elsa Kugelberg: Att ”bukbesvär” blir ”kukbesvär” kan låta kul – tills man börjar medicinera https://www.dn.se/kultur/elsa-kugelberg-att-bukbesvar-blir-kukbesvar-kan-lata-kul-tills-man-borjar-medicinera/

An Instagram reel posted today by the Swedish Green Party member Alice Bah Kunkhe, about LGBTQI+ rights in the EU including a demand for a ban on conversion therapy.

"As promised, here are the new data on systemic inflammation in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). - Jarred Younger"

Good suggestion, but maybe better to ask about orthostatic intolerance or dysautonomia so you don't leave out all of us with orthostatic hypotension etc?

I checked Worsened 'hangover' effect the next day + Upset stomach - soon after + Aggravation of ME/CFS symptoms soon after + Other unpleasant symptoms. I can't drink more than approx 6 cl of wine nowadays. I still enjoy the taste, though. The first time it happened to me I was travelling solo...

Yes, my sound sensitivity is much worse on the left side than the right. I experience much worse paresthesia on my left side in general. I often use different "strength" earplugs for this reason, for example Loop Quiet in my left ear and Loop Experience in my right. My light sensitivity is...

"C-Reactive Protein (CRP) is a sensitive marker of inflammation. I am presenting some new data on CRP elevations I see in chronic pain and fatigue conditions. - Jarred Younger"

Paywalled news article in a local paper: Richard Gavettes låtar släpps efter hans död https://www.hn.se/noje/musik/richard-gavettes-latar-slapps-efter-hans-dod.8ce0c630-0ae0-4541-840f-7200a3f0e151 http://richardgavette.se/

Is the ban really going ahead in the UK, or has it been stalled? Also note that the planned ban on conversion therapy does not include all sexual minorites, for example asexual people. Forum thread here: https://www.s4me.info/threads/plans-to-ban-gay-conversion-therapy-uk.4857/