Search results

Sorry, I'm unable to summarise or write about it in a way that does it justice. There are modules on What is POTS?, self-advocacy basics, POTS self-advocacy in medical settings, self-advocacy with friends and family, and on self-care. I loved this quote, it says a lot about the perspective it...

Rachel, the founder of Awareness for POTSies, has developed an online pilot self-advocacy program as a part of her doctoral training at The George Washington University. It's free to sign up at the moment. https://www.awarenessforpotsies.org/self-advocacy-program I'd like to warmly recommend...

Conversion practice recall and mental health symptoms in sexual and gender minority adults in the USA: a cross-sectional study https://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(24)00251-7/abstract "Recall of conversion practice exposure was associated with a range of mental...

This conference started today. RME says on their Facebook page that there are about 100 people attending in person and 600 watching online.

An article written by Björn Bragée, in an online membership magazine for serior citizens. Tröttare än vanligt efter covid? https://www.senioren.se/expert/trottare-an-vanligt-efter-covid/

Paywalled article in a local newspaper. Märgben, köttbars och kycklingknäcke: Dieten blev Jennies räddning https://www.borlangetidning.se/2024-10-06/margben-kottbars-och-kycklingknacke-dieten-blev-jennies-raddning/

RME Stockholm organised a talk on 30 September, to teach healthcare professionals at Södertälje Hospital about ME. Among the people giving presentations were a person with ME, the chairperson of RME Stockholm, Björn Bragée and a pain physician. Around 40 guests attended the talk. The talk (or...

October is international dysautonomia awaress month. Dysautonomi Sverige is running an awareness campaign this year (in Swedish), and they usually publish very high-quality science based content, so I would like to recommend those interested to follow them on social media. They are well-informed...

036 - Elevated adrenaline in ME/CFS "This recent meta-analysis found that individuals with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may have elevated adrenaline while people with fibromyalgia (FM) do not. - Jarred Younger" Discussed on the forum thread here:Adrenergic...

¨

Finland: Terveydenhuollon ammattilaisten tietämystä kroonisen väsymysoireyhtymän (ME/CFS) ja long covidin hoidosta ja kuntoutuksesta tulee lisätä...

S drar undan mattan för ME/CFS-patienter – M kräver gemensamt arbete för att säkerställa rätt vård https://www.mynewsdesk.com/se/moderaterna-stockholms-lans-landsting/pressreleases/s-drar-undan-mattan-foer-me-slash-cfs-patienter-m-kraever-gemensamt-arbete-foer-att-saekerstaella-raett-vaard-3345151

:thumbup: Kommentar: Angreppet gör oss sorgsna https://www.svd.se/a/8q943w/nio-undertecknare-fran-ki-och-ks-i-kommentar-till-hanne-kjoller-om-postcovid :grumpy:

RME wrote about the protest on their Facebook page yesterday:

ME-patienter protesterar – blir utan vård https://www.mitti.se/nyheter/mepatienter-protesterar--blir-utan-vard-6.26.248820.9826bbf9a6

Article published on Gothenburg University's website: Oklart om livsstilsråd faktiskt fungerar https://www.gu.se/nyheter/oklart-om-livsstilsrad-faktiskt-fungerar

This opinon piece is not about ME, but still relevant I think. Tvinga inte läkare att ge hälsoråd – de hjälper ändå inte https://www.gp.se/debatt/tvinga-inte-lakare-att-ge-halsorad-de-hjalper-anda-inte.ff8e999c-b838-4871-b10d-b506c8fae9c6 Google Translate, English. One of the authors was...

Guidelines Recommending That Clinicians Advise Patients on Lifestyle Changes: A Popular but Questionable Approach to Improve Public Health Minna Johansson, Amanda Niklasson, Loai Albarqouni, Karsten Juhl Jørgensen, Gordon Guyatt, Victor M. Montori...