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There has been a fair bit of drama in certain parts of the Swedish ME community recently. More is expected today, so here's a bit of background information on the current situation. Swedish doctor/researcher Jonas Axelsson of Ameliekliniken, formerly known as RED Clinic, and Karolinska...

Today, 25th October, the famous indoor arena Scandinavium in Gothenburg, Sweden, will be lit up in turquoise lights for Dysautonomia Awareness Day. Pretty amazing, I think :) https://www.facebook.com/gotevent/posts/pfbid0E17vmCMbywCoJ9XX5Pm2Dt4rfd9tuU86ALHVkFHD7c4Kkyeuzg89GauWKBUSbrFCl

(Not ME) There was a really good article about a pwPOTS in a Swedish local paper last week. Umeåstudenten Emilia drabbades av mystisk sjukdom – svimmade fem gånger om dagen https://www.folkbladet.nu/2023-10-20/umeastudenten-emilia-drabbades-av-mystisk-sjukdom-svimmade-fem-ganger-om-dagen-6f193

Video recordings from the ME conference in Stockholm 11 October, hosted by RME, have now been published on YouTube: https://www.youtube.com/@rmesverige1475/videos This conference was arranged in collaboration with organisations from Norway, Denmark and Finland (doesn't say what orgs). You can...

Marita är sängliggande 20 timmar per dag – nu ändras vården https://sverigesradio.se/artikel/privat-me-vard-slopas-kroniskt-trotta-marita-oroad

ME-läkaren rasar mot slopad privatvård – slår mot de sjuka https://sverigesradio.se/artikel/me-lakaren-rasar-mot-slopad-privatvard-slar-mot-de-sjuka The region = the local government responsible for healthcare etc.

(This is not recent news, but I don't know where else to put it.) There is a private ME clinic in Gothenburg, Sweden, at Citysjukhuset +7. I don't know when it opened. The doctor is Carmen Pichot, who used to work at the Gottfries Clinic and more recently at Bragée ME Center. Biomed, not bps...

Two new very short videos about PEM in Swedish, on RME Sweden's YouTube channel.

For what it's worth, here are a couple of wiki pages about university college (högskola in Swedish) : https://en.wiktionary.org/wiki/h%C3%B6gskola https://en.wikipedia.org/wiki/Education_in_Sweden But I don't know if høyskoler and högskolor are the same thing.

Does anyone else here suffer from ocular or visual migraines during PEM? I have them with aura sometimes too. No headaches though. Have you gotten to try any treatments, and if so did they help? Are there any existing threads on this? I couldn't find any but maybe I'm using the wrong name for...

On Swedish radio this morning: P1 Morgon: Farligt med långtidscovid https://sverigesradio.se/artikel/farligt-med-langtidscovid SR Ekot (nyheter): Fortsatt risk att drabbas av långtidscovid https://sverigesradio.se/artikel/fortsatt-risk-att-drabbas-av-langtidscovid Comment by @MittEremltage...

Somebody asked me to add this quote as well:

A reply to the opinion piece: Undvik begreppet »funktionell« i smärtvården https://lakartidningen.se/opinion/debatt/2023/10/undvik-begreppet-funktionellt-i-smartvarden/ A reply to the reply, by Maroti et al: Meningsfullt skilja på »funktionell« och »strukturell« smärta...

I just made a post in the News from Scandinavia thread on the latest opinion piece by Hanne Kjöller. An attack on pwME, pwED and pwLC, and what she calls "harmful sick leave" :grumpy::mad: Unclear if this is directly related to the lobbying by the Oslo Consortium, but it does have the same...

Yet another attack/opinion piece by Hanne Kjöller on people with ME, long covid and exhaustion disorder :grumpy::mad: "Harmful sick leave" :eek: DN.se Varannan patient hade aldrig behövt sin sjukskrivning https://archive.ph/8Y3Xs Excellent comment on X/Twitter:

DysautonomiSverige (dysautonomia Sweden) shares a series of personal stories on their Instagram account. Here's the first one: #DysautonomiSverige

Dysautonomia International: Dysautonomia Awareness Month October 2023 http://www.dysautonomiainternational.org/page.php?ID=244 PoTS UK: PoTS Awareness Day 25th October https://www.potsuk.org/about-us/pots-awareness-day-25th-october/

KBT kan hjälpa mot extrem trötthet vid postcovid https://sverigesradio.se/artikel/kbt-kan-hjalpa-mot-extrem-trotthet (Sveriges Radio is Sweden's national publicly funded radio broadcaster.) Comments on the article by @MittEremltage on their blog: Gammal skåpmat...

This is an interesting point. Just want to add that my kind of sound sensitivity is the one that is painful, heavily distorts sounds, drains my battery and brings on PEM. The Loop earplugs do block and change many sounds enough that I can tolerate them.

Sympathetic but paywalled article in a Swedish local paper: Teresias liv förändrades över en natt av ME-sjukdom https://www.smp.se/feature/teresias-liv-forandrades-over-en-natt-av-me-sjukdom/