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Some more facts available now, published by the government and SBU: Uppdrag att ta fram ett nationellt kunskapsstöd för postcovid och andra postinfektiösa tillstånd...

A formal question by a Swedish MP (riksdagsledamot) to the Minister of Social Affairs Jakob Forssmed: "Do the Minister and the Government intend to include ME/CFS in the recent post-Covid missions?" Nationellt center för postcovid och ME/CFS Skriftlig fråga 2022/23:623 av Karin Rågsjö (V)...

Maybe because inflammation is such a big part of PEM for some of us? Including high and/or rising levels of CRP during PEM and relapses.

These are great, thank you so much! :) I really appreciate it!

I agree, Peter. And I believe that it's important that we choose our words carefully when discussing these things. Let's not even for a second pretend that the AI output is somehow comparable to genuine human empathy. They are two completely different things. It's not empathy, so let's not call...

AIs are data/compute systems. AIs are not capable of empathy.

Brilliant, thank you so much!

I haven't spent any time at all with him personally. I personally wouldn't even consider participating in a study where he (or someone like him, with a BPS history like his) had such a key role. It's something I feel incredibly strongly about. I would never be able to trust someone like him in a...

But they do. Brian Walitt is literally the lead clinician.

Swedish GP/activist/pwLC Lisa Norén was live tweeting (in Swedish) while watching SFAM's livestreamed webinar on long covid today. Thread here: https://threadreaderapp.com/thread/1651542396398706691.html

Very annoyed to see Saligan's name pop up yet again. Seriously, why do they keep involving and prioritizing these problematic, psychosomatically oriented people? :grumpy: I remember that we looked into Saligan's work both during the P2P process and then again later when it was announced that he...

Professorn förklarar skillnaden mellan ME och postcovid https://www.tv4play.se/program/nyhetsmorgon/professorn-f%C3%B6rklarar-skillnaden-mellan-me-och-postcovid/20514722?offset=3

Nyhetsmorgon TV4, 23 April 2023. Video interview in Swedish (9 min 30 sec). Ny forskning visar förändringar i hjärnan hos postcovidpatienter https://www.tv4play.se/program/nyhetsmorgon/ny-forskning-visar-förändringar-i-hjärnan-hos-postcovidpatienter/20514422

I've listened to this now. Jonas Bergquist did an excellent job! :thumbup: (Bad PEM, sorry for all the mistakes.) He said that there are imaging techniques (such as MRI) that show anatomical changes in the brain, and more selective imaging techniques that indicate inflammation in the brain...

Ny forskning visar förändringar i hjärnan hos postcovidpatienter https://www.tv4play.se/program/nyhetsmorgon/ny-forskning-visar-f%C3%B6r%C3%A4ndringar-i-hj%C3%A4rnan-hos-postcovidpatienter/20514422

Yes :grumpy: @MittEremltage too has commented on this on her blog: En bisarr och farlig naivitet! ("A bizarre and dangerous naivety!") https://mitteremitage.wordpress.com/2023/04/22/en-bisarr-och-farlig-naivitet/

(Not ME) Swedish icehockey player Lukas Bengtsson talks openly about living with POTS (was very ill for a year but better now, needs compression garments; has a great team helping him through physiotherapy, chiropractic and naprapathic medicine; needs extra time for recovery and rest, etc)...

Some news articles: Regeringen presenterar satsning för postcovid https://sverigesradio.se/artikel/regeringen-presenterar-satsning-for-postcovid Regeringens initiativ om postcovid: ”Fler aktörer måste jobba med frågan”...

(Not specifically ME, but relevant to pwME.) The first ever official Swedish guideline for home health- and medical care has been published by The National Board of Health and Welfare. Hälso- och sjukvård i hemmet – personcentrerad vård och rehabilitering...

Virus- och pandemifonden utlyser ett forskningsanslag à 200.000 SEK för forskning om postcovid https://covidforeningen.se/utlysning-projektanslag-forskning-postcovid/ The “Virus- och Pandemifonden” announces a research grant of 200,000 SEK for research on post-covid. Background: The “Virus-...