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  1. mango

    Are blackout blinds or curtains any good?

    Yes :) I have blackout curtains in my bedroom, invaluable. Would 100% recommend.
  2. mango

    News from Scandinavia

    Annah Björk – två år med postcovid https://sverigesradio.se/avsnitt/annah-bjork-tva-ar-med-postcovid
  3. mango

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Thank you so much for transcribing, I really appreciate it! I'm deeply impressed by Nina Steinkopf, over and over again. She's phenomenal.
  4. mango

    News from Scandinavia

    Hanne Kjöller (Swedish bps extremist, nurse, columnist) comments on a tv programme about the brain. Vi älskar att prata om vad som gör oss sjuka – det gör oss inte friskare https://www.dn.se/ledare/hanne-kjoller-vi-alskar-att-prata-om-vad-som-gor-oss-sjuka-det-gor-oss-inte-friskare/ Very...
  5. mango

    News from Scandinavia

    The regional council assembly (regionfullmäktige) in Region Örebro, Sweden, recently rejected a motion to develop the region's compentency regarding ME. The minutes of the meeting: https://politiskamoten.regionorebrolan.se/committees/regionfullmaktige/mote-2023-02-13 Video recording of the...
  6. mango

    NHS treatments for people who get covid...?

    Bragée ME Center in Sweden sent out a questionnarie to all their patients in 2021 or 2022. As far as I know, they still haven't published any results. ETA: The study started in December 2021, and included questions about reactions to covid vaccines as well.
  7. mango

    Severe difficulties with eating in ME/CFS

    Try this? https://archive.is/YWjwk
  8. mango

    Severe difficulties with eating in ME/CFS

    If that would be the case, why not label it dysautonomia or something along those lines? Or do you not accept the concept "dysautonomia" either? (I, too, am genuinely trying to understand your point of view.)
  9. mango

    News from Scandinavia

  10. mango

    News from Scandinavia

    Johanna har skrivit en bok om ME – "Vården greppar inte vad ME är" https://sverigesradio.se/artikel/johanna-har-skrivit-en-bok-om-me-varden-greppar-inte-vad-me-ar
  11. mango

    Sweden: ME clinic and Masano Health digital rehab for ME/CFS

    "We ME sufferers have the same right to safe and good care, ethical and methodologically sound studies as everyone else. Criticism of research is part of the scientific process and scrutiny of care is part of a democratic society."
  12. mango

    The Atlantic - Long COVID Has Forced a Reckoning for One of Medicine's Most Neglected Diseases - by Ed Yong

    Yesterday the Swedish newspaper Svenska Dagbladet published this article in full, translated into Swedish :thumbsup: Sadly behind a paywall :( Postcovid ger ME-sjuka efterlängtat erkännande Postcovid har visat att virusinfektioner kan vålla kronisk sjukdom, menar Pulitzerprisade...
  13. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Here's another official document from Region Stockholm, published before the decision was made: Utredning av beställningsform - Vårdval Specialiserad rehabilitering vid långvarig smärta och vid utmattningssyndrom samt tilläggsuppdrag Specialistläkarmottagning vid ME/CFS...
  14. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Here are the official documents from Region Stockholm, the minutes of the meeting. https://www.regionstockholm.se/politik/politiska-organ/halso--och-sjukvardsnamnden/HSN-sammantraden-2023/#--chn-3680ecec55663227581-c2a7e9293a885271146-0d7d594c75e55351843
  15. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    News article about the decision Beslutet: Smärtkliniker tas bort som vårdval i Region Stockholm https://www.svt.se/nyheter/lokalt/stockholm/beslutet-smartkliniker-tas-bort-som-vardval-i-region-stockholm
  16. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Opinion piece by Björn Bragée (published 16 February, ie before the decision was made): ”Regionbeslut slår sönder forskning om ME/CFS” DEBATT: ME-experten Björn Bragée larmar om följderna av stoppad privatvård för kroniskt trötthetssyndrom...
  17. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Björn Bragée comments on Facebook: https://www.facebook.com/argadoktorn/ Direct links to the relevant posts:
  18. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Bragée Clinics' comments on the decision: Vårdavtalet avvecklas på sikt: Rehab och utredningar pågår som vanligt https://www.bragee.se/namnlos-17
  19. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    A comment from RME Stockholm, on Facebook. However, they have a long history of being less than transparent in their communications, so personally I'd prefer to get the facts from the primary sources rather than RME's interpretations and speculations. To me, RME's comment below doesn't seem to...
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