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BPS proponents David Gyll, Carl Sjöström and Henrik Vogt wrote a reply: Brett perspektiv ger precision vid postcovid https://lakartidningen.se/opinion/debatt/2022/10/brett-perspektiv-ger-precision-vid-postcovid/ Google Translate, English ("Broad perspective provides precision in postcovid")...

Thank you so much for the summary! Incredibly helpful :)

Jonas Bergquist was on the Swedish breakfast show TV4 Nyhetsmorgon this morning, together with a young person with ME and her mother. Smilla drabbades av sjukdomen ME: ”Allt roligt försvann”, 2 min 31 sek Smilla Thelander var en aktiv tjej men drabbades av sjukdomen ME när hon var 13 år. Och...

New article about Swedish former professional tennis player Robin Söderling, and his book (memoir?) "Sluten" that is being released in Sweden today. Epstein-Barr virus infection and ME/CFS were mentioned in several articles during the first few years of him being ill. I don't know if ME is...

(Sharing only as info, not meant to be a recommendation.) Phoenixmottagningen Järna in Sweden (formerly known as Vidarkliniken) is offering a talk on ME from an anthroposophic perspective on Friday 21 October. https://www.facebook.com/events/s/temakvall-om-mecfs/339180281738950/

Thank you so so much for this! Incredibly helpful, and I really appreciate it :)

Disgusting :mad:

Same :(:grumpy:

Some fan groups have been making and sharing "covid bingo cards" on social media, documenting confirmed covid cases after shows, in order to encourage people to get tested, isolate, wear masks etc. Here's an example from July (Krakow, Poland). (P.S. There are plenty of alternative speculations...

Great work, @MittEremltage :thumbup: Thank you so much!

For their own data on ME patients they are referring to the questionnaires you are required to fill in before you know if they will you accept you as a patient or not, before your first visit at the clinic. They are the basis for most of their research, it seems?

In an article published 29 September 2022, Bragée argues that there is a proven link between ME and difficult childhood experiences. Svåra livsupplevelser: Många har aldrig berättat för någon https://www.bragee.se/svara-upplevelser (my bolding)

(Not ME specific but very much relevant to all disabled people in Sweden, including pwME.) Sweden's new chairman of the Committee on Justice wants to remove the law against discrimination. (He is representing a political party with fascist and Nazi history, and they feel they are often being...

A Swedish report on post-covid (commissioned by the government) was published today: Postcovid i praktiken: En kartläggning av vården och omsorgen av personer med postcovid https://www.vardanalys.se/rapporter/postcovid-i-praktiken/ Here's a news article on it: Vård- och omsorgsanalys...

When a 17-Year-Old Girl Is Diagnosed with Myalgic Encephalomyelitis: A Case Study from the Swedish Health Care System—A Parent Perspective Eva Bojner Horwitz, Jonas Axelsson, Olli Polo, Leif Widebert, Töres Theorell, Anabelle Paulino, David Ullman, Jonas Bergquist Abstract This case study...

Sympathetic article in a Swedish newspaper about the fact that long covid clinics in Sweden are being closed down despite long waiting lists, and how disabling long covid can be, with severe and strange symptoms. Sara lider fortfarande av postcovid: ”Inget i kroppen fungerar som förut”...

Ooh, did you? :) Do let me know what you think, when you've had a chance to wear them for a while. I turned the floppy part of the silicone thing "inside out", which made it easier to aim and push it over the tube. One side first, and then stretch it a bit to go over the rest of the tube?

I haven't tried them with engine noise, will let you know if I do.

I've tried the Loop Experience Pro with the mute add-on now, too. I was able to listen to music without getting the painful "blown speaker" sound in my ears, and the music sounded great :) Felt amazing to be able to enjoy music, if only for a few moments! :) I'd say the difference between...

Swedish influencer Vanja Wikström (37.7K followers) announces on Instagram that her husband will be starting DNRS, in an attempt to treat his ME... She will be blogging about his "journey". :grumpy: