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I’m so sorry, that’s awful :hug:

I’m confused - I thought there was already something from her? Faint memory of discussion of how she corrected the line ‘worst I’ve ever seen a patient treated’ like is there more to come from this?

Thank you it’s really helpful to have a guide cutting through interpretation that might be loaded by old assumptions and also to remind/flag where these old ideas get snuck through in disguise or as seemingly innocuous one-liners

How long has it been now for you that you are feeling better? I’ve no idea whether this is the sort of thing that only helps as long as you keep taking x or is if a round of treatment then you feel better? do you have supervision of your health for side effects and improvements etc? Ie is...

As a quick read it seems that this psych support is the only ‘treatment’ MUS get. 268 of them from paediatric and neuro compared to 30,000+ ‘other’ so I’m guessing it isn’t like fir like in severity of need. It’s an adjunct gif all the rest. And symptoms like seizures listed so no idea of the...

classic Sharpe 'being raconteur' Like someone living in a film based on some hero who read a paper from 1912 on neuresthenia and thought it was the latest genius scientific development for the 2020s. But you know genuinely believed that 'I've discovered the transformation for all illness: no...

:laugh: thanks you @JemPD I'm glad you can relate. to be fair I was a bit of a tomboy in some ways, unless I was going out, but it wasn't self-neglect it was both not really suiting the manicured hairdo and back in the day doing a lot of sport. At work people used to say I looked put together...

[responding to a deleted post] I think this is like physiosforme did great work particularly for people who ended up in front of a physio not for/'to treat' their ME, but because of other issues like a bad back, MSK, other health conditions and so on. And I'm hoping that similar to an...

I know this is cross-over territory but (maybe it’s trauma from hearing bps being talked about ) I just thought about the following terms that might be common-usage (I think incorrectly) in certain areas of healthcare can be really triggering because they seem like ‘hang-overs’ from having put...

It really is a weird documentation of excruciating harm isn’t it. watching people explain what their behaviour has done to them and their attitude and response is to mess with their brain even more until they are eventually worn down by attrition and coercion do we believe any of them...

They are fascinated by it because this is a Trojan horse (like we see when bps claim mental health stigma they really mean ‘against them’ and are trying to pretend it’s the poor patients targeted by then) for them feeling people think their work is nonsense for any reason other than their work...

Seems to at least saying the right things about how serious this is and how you can’t trust this diagnosis to the point re evaluation is warranted I think there is a case to be out as well that it’s a discrimination issue because all the suggestions of narratives and demographics by people in...

Funny isn’t it when you develop another term that happens to be best treated with offering nothing of any use how popular it can suddenly become. it’s almost like the term is a massive cover-up for all the real reasons they don’t want to provide healthcare to someone.

Indeed. Sadly for all the faux words there are plenty here who have an attitude of ‘damaged’ and ‘fix yourself’ to even the most heinous, everyone else was responsible for it other than the victim - including society - crimes it’s gross but people like that think they aren’t the ones with the...

It’s not daft at all, the acronym we’ve used for psychosomatic being the same as thus has been something I’ve been conscious of for a while, it just happened to be that no one needed to talk about the British psychological society that much. So this is an issue that’s been a bit of a sitter that...

I had a different analogy I use to use (before I got even more ill) but yes, particularly when I was having to work I used to know I could sleep through things that no other human being would sleep through, pretty much at any point outside of work - I won't use the example I used but people...

Yeah, I used to be sure that something serious had been missed based on me having red flags in the blood etc done over the years but absolutely no real investigations ever done. But I'd get the crap from people around me of 'don't wish that on yourself' Yet these days as I'm going through the...

there was a sort of joke when I was a youth where lads would do something annoying, continually, like poking you as you tried to have a conversation with others, and either say 'are you annoyed yet' or 'does it make you laugh yet' or something other. This is like that joke on harrassment but...

I'm sure it isn't I just mention that was the first time I heard of it. And of course I'm not sure it would have been high quality taurine and was with all sorts of added other things, so I guess even if it was useful then it couldn't have been 'a cure' based on if you had to drink it every day...

well it sounds great then that they are doing some sort of trial. Oh Mij what a shame and how frustrating for you. And potentially for everyone with ME - whether it turns out to be something that fits them or not. I'm all for things that help some being signed off as for myself B12...