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Although they might let us know what the demand is for these days?

All I know about taurine is that it’s the ingredient red bull used to claim it had lots off and described it was like a strong caffeine (‘red bull gives you wings’) and that it’s in cat foods but wasn’t perhaps as straightforward because I was alarmed when I first saw it thinking it was a...

Can we set up a new thread on this topic? It throws up some interesting questions in the context of 'maybe things moving forward' for the future and with implementation of guideline etc, but I think I got the impression point 1. was a key issue when I last read about it. Then I realise if it is...

Does she have her own page here yet? I wonder if it might be useful if not?

This has reminded me of the conundrum regarding biopsychosocial and the BPS acronym we use here for it: meaning the psychosomatic people. If the British Psychological Society (BPS) are something we are needing to talk about here - and I think it is relevant - then that dilemma regarding...

well this is well-timed? Just came through via email from the ME Association: Help the British Psychological Society develop good practice guidelines for ME/CFS - The ME Association

Just looked her up. She has a medical degree then became a fellow in Evidence Based medicine at Oxford. With her journalism quals in between. It looks like she worked in investigations for the BMJ at some point.

Another point to flag here is the idea that the real 'therapy/re-education/technique' often isn't the model on the piece of paper. I'll use the example of behavioural psychology/therapy in its classic form (a lot of people also don't realise that one 'side' of CBT originated from the 'cognitive...

There is something to be said about bringing up and getting therapists (and laypersons) to explore and admit to themselves where they might not want to ‘lose’ the feelings that power differential gives them. so that once it’s clear that is not justified it can be hard to let go of can be...

Not on form today so I am only adding perspective from a very layperson trying to access it when not feeling well point of view. Trying to start from the very basics so I don't say something really stupid because I got the wrong end of the stick. My first question: Decode ME looked at genes...

Moved posts JUst to come back to this one, because there is a somewhat specific and succinct point of a very important thing to add to the list of what needs to be transformed for ME care: The idea of 'behaviour' needs to be detoxed out of ME care and ME staff. I'd actually like to start...

perhaps not for this thread specifically but I'm thinking of this quote/research, and the 'known knowns' of those who are currently and have been in hospital and had horrific experiences eg Karen, Carla, Millie, Alice, and I won't list anymore because I will end up leaving out people whereas...

Transdiagnostic re-education sausage machines?

I think that’s the difference (one of them) between being a psychologist and a therapist, particularly a CBT (or other) therapist/trsiner/professor where you only study the technique not whether it’s useful for what someone has or to identify what someone has.

I think you are right though. And this is absolutely where taking this issue seriously and focusing on example care plans for actual medical professionals with input from clinicians and good HCPs who know their stuff on adjustments could be very important to make headway. And symptoms, and...

I'm quite astounded by this example because part of me is thinking why on earth such a huge development could be based on one study given they must know how flawed it all is - whether it is a mistake or fraud. But then of course we have enough examples. And when I read Crawley et al (2013) which...

well this one is definitely one to avoid sadly. You’d think a ‘symptom’ for which you had blood tests if a biopsy showing an issue would mean you were on the same page as to what ‘treating it’ would mean. it needs a solid campaign to out this one because yes it’s a straight lie and deliberate...

sorry to be a pain but I think symptom management has been one of ‘original’ con phrases . It sounds so logical doesn’t it to be able to avoid the sticking point of the illness NAME but surely we agree on the proof eg blood tests and symptoms that can’t be denied. But I got conned there very...

I find realising that as a grown up whose been fine with a lot more ‘difficult’ than most it helps to remember that if something like this upsets me that’s because the writer intended / did it to upset their target. that’s different to saying that’s anything about or to do with you or what you...

Yeah @Trish i don’t think you should worry about this and glad you’ve put a copy here so we who aren’t on blue sky can read fir ourselves. so thank you as I think the trail says it clearly for itself.