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On a sidenote, as I was looking up his qualifications I came across this page: Peter GLADWELL | Service lead Bristol M.E. Service | PhD MCSP | North Bristol NHS Trust, Bristol | Pain Service | Research profile (researchgate.net) Which includes the following in the description: I have just...

I highly doubt any professional qualified psych should be writing such things even if someone had any particular mental health condition? That would also be discreet and focused on suggestions of adjustments, because the only point of labels is to preserve such presumption being fed. They...

It is exactly like that - go into the office/school/hospital the next day and have the same 'jokes' levied at you , OK'd by it must be OK because it was on TV, and a sophist reply pretending it isn't misinformation perpetuating stigma and untruths onto an individual (which is about as intimately...

Yes I saw that and think it is really naughty and stinks. Reading and ignoring is just dismissing to be accurate. Cherry-picking or misinterpreting is very rude too. I'm utterly gobsmacked at the gall of both of the charities in these responses as someone who has a background in making sure...

Am I missing something from Pete Gladwell's list of qualifications? Dr Peter Gladwell - BACME He seems to have a BSc (in physio I assume) and PhD which he did in TENS for pain but is involved in delivery of the Masters level 'fatigue' course Were there other people involved in this? Because...

I don’t think ‘if you choose’ [to increase your activity/pace-up] is the right phrase and is at best insensitive to the many who aren’t lucky enough to not be deteriorating. which feels like it must be a tiny number to me because I can’t imagine those who are mild get decent adjustments from...

Indeed. It feels like a very important - given other scandals that have been going on - campaign to highlight how much coercion, peer pressure, perceived threats are not even being acknowledged nevermind 'made safe' and potentially, along with not recruiting patients who are either...

My heart goes out to Karen and family, this has been and is so awful. I don't even know what I can/should write because of not wanting to make anything worse, which is also awful. I'll try when I say if only people could understand the deep heartbreak caused from feeling that there has been...

Thanks for pointing all of this out, but particularly this one-liner. I think it underlines an attitude - there is so much underneath this I think it might be worth a page just because dissecting it in itself as an example could pull out quite a lot of the issues going on. in one part a CBT...

Oh and I bet it’s being used - that deliberate misuse of words to encourage GPs to write false/inaccurate notes - to screw those applying for things like early retirement or PIP both by using it against the person them self even if they’ve never improved just gone due. Over twenty years but it’s...

The me:cfs specific part should be that it is aiming to keep us out of PEM , so focused on energy reducing /envelope support too ie avoiding the ‘but if you get a wheelchair then you’ll get out of the habit of walking’ type nonsense

thats a great title. I think the phantom healthcare is such a good phrase on so many levels. The pretend it’s something relevant and the dusappears when certain people go to access it and the catalogue we’ve seen in Maeves situation when it happened followed by the party lines given one by one...

I hope there is a lot of social media able to make this change published far and wide to counter the ‘when retractions are made they are in small type on page 18’ type thing. it should be a news article in itself at least hopefully that way if she does it again then should anyone Google her...

Yep I think there are certain power bases including this that had been allowed to prosper under the old regime I’d be interested in a chart to see how many in BACME aren’t working under one of those so that their job depended on following what those who’d grown a business or kingdom or...

Ok but that makes it even more vital that they start describing when a deterioration (which might initially have been PEM or overdone it and maybe I’ll recover) and that they define crashes vs flares (don’t like that term but seems something else specific to do with symptoms vs exhaustion) in...

And if written for GPs then taking your list is much better. gp already has various flags inc notes about people who need more time or slow speaking where they struggle with communication and probably lots of other things. And if it’s only the good ones then using those terms mean the less...

We need to get rid of and ban the term relapse too it was inserted to make it sound like a mental health condition with a mental health paradigm of ‘recovery’ and it’s misinformation that misleads as it is deterioration it is describing , physical deterioration ie illness getting worse or...

There is a strong point to be made too that Gladwell seemed to be developing all of this before the new Nice guidelines, and an important part of that was defining the condition, emphasising PEM and calling out the past research was based on recruitment that did not require PEM. All of...

that exact same phrase came to me also about an hour ago. last thing we want is someone planning to do the same as the last lot did. It isn't supposed to be about someone who isn't a patient using this as an opportunity (or of course any individual patient) to have the same power and kingdom as...

Yep, from his research and what he has been pushing since 2013 Gladwell's spiel has been to claim (along with the Crawley et al paper 2013 that included White, when they realised it didn't work 'contrary to PACE') it's not the 'what' that's being offered that doesn't work, it is just that they...