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It is. I don't know how/what would be allowed by any paper, but I feel so enraged by it that I feel it needs an article on its own from the parents directed straight at Miller and his use of the photo. Something that shows him up and speaks directly to him (and others) as a wake-up call of 'look...

Great looking forward to reading Exeter is a city btw (it has a cathedral)

Sad face. That’s a big shame

So no one can read it but I’m wondering given this is palliative care whether even when people are dying this area is giving short shrift to the kind concept of just just taking people at their word for how they feel snd listening to their bodies From the references there seems to be some...

Indeed , this is the classic ‘when stupid thinks they are trying their hand at psychology by bestowing their random witherings and judgement on the world’ that all to many get confused with what the proper subject of scientific psychology is. the whole literature needs clearing out now the lack...

So she used this one as a foil to cover up/not understand what she saw in her patients was a mirror of normal reaction to her vile behaviour and attitude. Yep people like that like to pretend it’s the other persons fault. I do also wonder whether sadly there is an attraction for certain types...

Oh gawd this isn’t one that’s based on the same fallacy as ‘you don’t see many current marathon runners with x,y,z so lack of it must be the cause’ so those who historically needed less severe intervention re tube feeding ‘tended to make a better recovery’? Surely they wouldn’t have missed out...

The most recent one I spotted I started talking about here: Financial Outcome Measure There are 3 posts (ie two after this) I was intrigued by the middlesex situation and was googling a bit. Anyway one example is from there - which relates to the A&E dept using an 'initiative' for 7 of their...

Yes well inaccurately and without evidence certain professions and departments seem to get away with accusing all patients with certain conditions of being lying manipulators (as if it is a pathology of the condition it can trip of the tongue as 'advice'). And noone calls that out as...

It's literally trying to hijack the narrative with the title he chose now isn't it.

I’m trying to have a think as mine definitely varies with something like exhaustion, and vice versa causes it but I feel like I’m not fully putting my finger on that when I reach to cite the usual PEM or fatiguability type things divided attention is the worst and for example if on a call and...

well said, and I like

So this is further explained, suggesting it really is focusing on quite short-term (for ME/CFS) 'friction costs':

Yes in particular the following sound like problematic 'best-fit proxies' which could perhaps have been bettered data-wise: Why Danish, when the rest is Germany? what are 'Danish population preference weights'? and is 112 and a response rate of 35% anywhere near appropriate to ensure...

Anyway so it looks like at first they are looking at equations where they are calculating value for 'SV health' - a health improvement value for each patient, and then one for the costs (what is saved in health costs). These are also combined with the above, which is the productivity losses...

OK so this is also interesting: I've flagged this because I don't know whether it is suggesting that all absentees for a certain time, whether near retirement or not, are no longer seen as contributing to productivity losses. I'd be interested to understand more detail on why this is used -...

It is an interesting one when you consider how poorly ME/CFS has actually been acknowledged in most countries nevermind reliably diagnosed and prognosis and impacts actually noted ie I'd imagine the accurate data wouldn't be there (because of attitudes to ME/CFS historically). I'm slightly...

It is something that does need to be discussed. Because leaving it open as a theoretical idea it does get abused Bit worried with some of these itemised listings when reading it with a cynical eye of how bits might be cherry-picked. Because something has gone very wrong in the next stage...

I agree. I think word count matters too with any articles. Do we think they go with chronic fatigue to 'expand the audience' because people think they know what it is or think they know someone with fatigue? And yes it is a plain failure we have that happenning still with these explainers...

Sidenote, so yes I think we all agree that every term is potentially loaded for someone in both ME and CFS, but that changing to something new risks that just being branded as 'the new conversion disorder'. And ME/CFS got settled on in the new guidelines for a reason. I think what I'm hinting...