Search results

It's an interesting one to bring up really, because as things move on for ME/CFS to focus on PEM and you think about the common other diagnoses the same person might have been given when they just see it as a lump-bucket FM/CFS/FND and the fact that people really could be quite likely to these...

OOh that people selling 'misperceptions or misunderstanding of pains' BS to everyone in the profession is pure evil and has so much to answer for. It utterly should be something that is criminal or properly has a propaganda hate term given it isn't even veiled and the impact is catastrophic -...

Benevolent paternalism. But worse, a new more vicious in consequence and slimy pretend it’s because we care turned up to ten so supporters ‘gave over their sick’ to them

Yep I reckon as well that whatever you name it as or they’d be willing to acknowledge I’d guess if put them all in a situation where they had to stand up still and couldn’t instinctively do things like moving feet, lean or perch etc then they’d all feel pretty unwell by twenty mins in or have...

and I also think that if someone put a smart monitor on them (vs healthy people) for the week before, assuming it’s a light week they can somewhat keep near to their manageable limits ie not peak time at work and then for the week of CPETs and after that for the me/cfs group many would find...

Duty of candour review - GOV.UK (www.gov.uk) Flagged on social media, I'm posting now because the deadline is tonight at midnight, sorry if I haven't had time to read and work out a good description (and not much idea myself without doing so). Those who know about duty of candour might want...

It’s all just pre-amble terms they invent to claim there is a need for another one of medicines little paternalist stories to get the psych patients to take their pills (changes your brain chemistry story) Turns out there are loads they admitted inventing either coming from someone marketing...

I dread reading this, because I find this sort of thing pretty chilling but am I correct in assuming from the abstract that the gist of this is that this lack of coherence terminology is like someone reporting a massive itch on their whole hand or pins and needles and someone looking at it and...

yep that's pretty shocking back-covering to offer the same nonsense that didn't work again leaving someone in a doom-loop of nothing will make them investigated, even whatever they dump them into and then offer clearly not working.

but if the constant propaganda of misinformation shut down it would on the other hand not heal anyone but remove the disability and harm caused and added by that in a not insignificant to liveability of life and getting somewhere with managing the condition way. Given we hear of courses from...

personal trainers have qualifications. But I see your point, like whether something is a supplement that falls into medicines or food or something else puts it under different regulation I think manipulation of that term 'recovery' is probably pretty insightful of the strategy for the area ...

On that last quote there is an episode of the West Wing (series 5, 10) where a tiny part of it is where there is mention of 'is there government/DOD research into mind control' and there are lots of surely not faces and the like as they check the answer, with a few dry puns ("are you doing it on...

And of course for children with CFS and the hostile environment created with the FII accusations and Pervasive refusal syndrome black hole then perhaps we simply need to map out what tactical options any parent has - and in the absence of either medical care or them not being harmed what blag...

On that last bit there was a classic line from sarah Tyson that springs to mind. it would be one thing trying one brainwash but even those laypersons pushing it to get us to shove off would be wondering why you’d do more than one if it worked [the first time] and more than one if it didn’t ?

I'm old enough that I probably still somewhat feel more confident in trusting a brand I haven't heard of exists if I have seen it on a shelf of a shop (online or not) or it has been reviewed or mentioned by a vehicle I know (like a newspaper review of eg plant sellers), lots of others I know...

agreed on the 'balanced journalism' protocol and the myth about how it can only be implemented a certain way to be balanced in that way, is really going to struggle with certain situations. In this instance it is hard to separate the fact that any person who is recovered from the LP is granted...

too right is it that they need someone in their stable who can give them the confidence that these things are indeed BS and how to be able to criticise them - a load of one-liners and a few names who stand behind these could probably cover most possibilities as it is such an iterative business...

I'd loved to have seen that! Or to have heard what you suggested. Thanks for trying.

Agree. Articles can never go far enough in underlining the harm that can be caused by these things. In fact there isn't properly articulated, yet, details even on the CFS-CBT even though it is basically like trying to be a conversion course - could it be that the 'disability is just a state of...

Very good point about the 'giving a microphone' issue. What these people sell is prejudice and propaganda of values that I'm surprised aren't banned from being advertised or from papers that are basically just advertising as they don't contain scientifically legitimate methods (and issue and...