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  1. Kalliope

    Podcast: Pediatrics Research Roundup, Diagnosing and Treating Long COVID – Episode 64

    I believe this podcast is from last year, but can't find a thread/post on it on the forum. Looking forward to listen to it.
  2. Kalliope

    Long Covid in the media and social media 2022

    JAMA The US Now Has a Research Plan for Long COVID - Is It Enough? Quote: Meriquez Vázquez said that many primary care physicians, particularly those who serve the Medicaid population, aren’t aware that Long COVID can manifest as diagnosable conditions such as postural orthostatic tachycardia...
  3. Kalliope

    Distinguishing features of Long COVID identified through immune profiling, 2022, Klein, Iwasaki et al

    Bloomberg Striking Drop in Stress Hormone Predicts Long Covid in Study quote: Low cortisol has been reported in people with myalgic encephalomyelitis, or chronic fatigue syndrome, and boosting it with hydrocortisone treatment has provided a modest improvement in symptoms, researchers Akiko...
  4. Kalliope

    Long Covid in the media and social media 2022

    In addition to the video, there's also the article Knowable Magazine How long will it take to understand long Covid? quote: Some evidence suggests that prior infection with Epstein-Barr virus (EBV), which causes mononucleosis, puts people at higher risk for developing long Covid. The...
  5. Kalliope

    Long Covid in the media and social media 2022

    At 9.13 minutes there's the subtitle "Long Covid and post-acute infection syndromes" where prof. Iwasaki says: I believe that the ME/CFS is probably of the same disease that people with Long Covid are suffering from, but were caused by other infections. Prior to Long Covid there have been a...
  6. Kalliope

    IACFSME 2022 Virtual Medical Conference: Day 4 Presentations: 30 July (9 am to 3.30 pm EDT)

    Medscape Clinicians Can Help People With Severe ME/CFS, Even Unseen by Miriam Tucker Quotes: Speaking at the recent virtual meeting of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME), patient advocate Helen Baxter, of the UK charity 25% ME Group...
  7. Kalliope

    IACFSME 2022 Virtual Medical Conference: Day 4 Presentations: 30 July (9 am to 3.30 pm EDT)

    Medscape Increasing Data Link ME/CFS, Long COVID, and Dysautonomia by Miriam Tucker quotes: At the virtual annual meeting of the International Association for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (IACFSME), speakers presented data showing similar pathophysiologic abnormalities...
  8. Kalliope

    IACFSME 2022 Virtual Medical Conference: Day 4 Presentations: 30 July (9 am to 3.30 pm EDT)

    Medscape Treatments Explored to Ease Post-Viral Symptoms of ME/CFS and Long COVID by Miriam Tucker Quote: "At the virtual annual meeting of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME), speakers presented data for a variety of approaches to...
  9. Kalliope

    MElivet - Blog posts by Nina E. Steinkopf

    New blog post from Nina E. Steinkopf titled: Silence from Frontiers on financial conflict of interest in publications She has sent letters to Frontiers making them aware of publications from authors with undeclared financial conflicts of interest. No action was taken from Frontiers...
  10. Kalliope

    Long Covid in the media and social media 2022

    them Long COVID is More Common in Bisexual and Trans People. The Reasons Why Are Complicated quotes: In a world where transgender people are more likely to live with chronic illness in the first place, this may not seem so surprising. “Of course [trans people] have higher rates of long COVID,”...
  11. Kalliope

    CD4+ Cytotoxic T Cells Involved in the Development of EBV-Associated Diseases, 2022, Ruiz-Pablos

    Wasn't there something with HLA Alleles and ME/CFS patients responding to cyclophosphamide?
  12. Kalliope

    Nature article: Why autoimmunity is most common in women (2021)

    I remember Radiolab had a fascinating episode on a possible evolutionary race among the placenta and women's immune system, and how this may have led to increased autoimmunity as women have fewer (or non) pregnancies. From the description of the episode: Three scientists dive down into our...
  13. Kalliope

    Infectious disease and cognition in wild populations, 2022, Townsend et al

    I spotted this in an article from today about the study written by Ingrid Spilde (who has written several good articles about ME and post viral disease) forskning.no: Dyr sliter også med å tenke klart etter smittsom sykdom google translation: Animals also struggle to think clearly after...
  14. Kalliope

    Infectious disease and cognition in wild populations, 2022, Townsend et al

    Trends in Ecology & Evolution Infectious disease and cognition in wild populations Highlights As infectious diseases emerge and spread in wildlife populations, it is becoming increasingly urgent to understand the implications of infection-linked cognitive impairment for the fitness and...
  15. Kalliope

    Long Covid in the media and social media 2022

    This article is from 19th July. Are patient led Long Covid organisations really calling for more rehabilitation? WHO Coping with the unknown - a family's story of living with long COVID Quote: The scale of long COVID – a long-term condition that will put significant burdens on health systems...
  16. Kalliope

    The Pharmaceutical Journal: Chronic fatigue: it is time to take its treatment more seriously - by Christine Parry

    Quotes: “One in four consultations in primary care involve fatigue — it’s the most common reason why people go to see their GP,” says Julia Newton, a consultant physician with an interest in fatigue at Newcastle upon Tyne Hospitals NHS Foundation Trust. At least 250,000 people in the UK live...
  17. Kalliope

    Long Covid in the media and social media 2022

    This is discussed in the latest TWIV. Begins at 8.27 Prof. Racaniello says he understands why people got mad. Says asking about "tiredness" in questionnaires about long Covid is not specific enough, so it was not about minimising fatigue. Rich Condit says people are rightfully sensitive as...
  18. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Agree. But as long as ME is described and presented as stress and tiredness, and deterioration as "disappointment", I assume nobody in the ethical committees can understand what enormous amounts of harm this actually can cause. The trial will have a psychiatrist available if any participants...
  19. Kalliope

    Norway: Røysumtunet, a centre for severe ME patients

    This week TV2 has covered a couple where the wife Katrine is suffering from severe ME. They and the GP believe a long term stay at Røysumtunet would be beneficial to Katrine, but their municipality refuses to cover the expenses. The husband Gøran is fundraising in order to help his wife. He's a...
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