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Haven't watched it myself yet, but seems like ME was also referred to in this lecture from yesterday by professor Akiko Iwasaki on Long Covid hosted by Body Politic. Here are some tweets about the lecture:

This looks interesting, but the article is paywalled The Washington Post How long covid is accelerating a revolution in medical research - Patients, who have typically been only subjects in the research process, are becoming partners in it

Ravi Veriah Jacques has also written a summary on twitter:

In another blog post by Nina E. Steinkopf, she writes about how this organisation, Hjelpekilden, once had invited an LP coach to give a lecture for its members. It did not go well. Google translation of the minutes: "It soon became apparent that her method, the Lightning Process, was very...

Nina E. Steinkopf has written a good blog post where she provides several examples of LP being like a sect. There's an organisation helping people who have left closed religious communities called Hjelpekilden. They have identified 8 ways to recognise such communities, and Steinkopf has had a...

Opinion piece in the Guardian by Ravi Veriah Jacques I have long Covid and despair that the UK government ignores its blight Quote: The underinvestment follows decades of underfunding for research into post-viral illnesses. Myalgic encephalomyelitis (ME), also known as “chronic fatigue...

Prof. Karl Lauterbach, Federal Minister of Germany for Health, refers on twitter to a paywalled article about Long Covid with the following comment (translated): Unfortunately it is exactly like that, worth reading article in @SZ In a few years we will see full extent #LongCovid . Now everyone...

Montreal Gazette The link between long COVID and a medical mystery quotes: Once known as chronic fatigue syndrome, myalgic encephalomyelitis (ME/CFS) has long been poorly understood, overlooked and often stigmatized. Now, early research suggests, up to half of all COVID long-haulers could...

Spotted on twitter via Dr. Maureen Hanson who comments: The Cornell NIH ME/CFS Center's major plasma metabolomics study is now available as an in-press preview. An easier-to-read final version will be available at the journal site in about two weeks.

JCI Insight Plasma metabolomics reveals disrupted response and recovery following maximal exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Abstract Post-exertional malaise (PEM) is a hallmark symptom of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). We monitored...

Spotted the paper via a tweet by prof. Kunst with the following comment: The mitochondria are commonly seen as the powerhouse of the cells as they turn food into energy. A new study now observed a loss of their membrane among people with #LongCovid, which likely indicates mitochondrial...

Abstract The mitochondrial membrane potential (ΔΨm) is a parameter often used to determine mitochondrial function; therefore, it can be used to determine the integrity and functionality of cells. A decrement of ΔΨm is implicated in several inflammatory-related pathologies, such phenomena can be...

Long Covid Podcast interviews doctor and researcher Ziyad Al-Aly, based in St Loius, USA about Long Covid. Not much news, but emphasis on the seriousness of the disease and how many people that are affected. He also says the work from patient advocates has been crucial for the field. Towards...

The journalist, Ingrid Spilde, has written several articles about ME and I think she's currently the science journalist with best overview of the field in Norway as of today.

The Norwegian news site about research, forskning.no, recently had a thorough article about current research into ME. @Midnattsol shared the article on the Scandinavia thread here. The article has now been translated into English and published at ScienceNorway. ScienceNorway What is going on...

Moved post Twitter thread from prof. Kunst with updated estimates of Long Covid cases and new ME/CFS cases

The newspaper Dagsavisen is following up this story. The health political spokesperson for the socialist party (SV), Marian Hussein, has started to get engaged in ME and supports the patients. She has asked the Minister of Health and Care Services to answer how ME patients should be ensured a...

Thanks for clearing that up for me :)

Thank you Trish. That's a good point. I saw that prof. Kunst has written a new comment to the study. With the first comment I got the impression that one was _more_ likely to develop Long Covid as vaccinated, which was quite surprising.

Spotted this on twitter via prof. Kunst who comments: IMPORTANT FINDING: A key argument for lifting restrictions has been that vaccination substantially reduces chances to get #LongCovid. In a new study, vaccinated people were NOT significantly less likely than unvaccinated to get Long Covid...