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I brought this Medscape article to my doctor when asking to try LDN. It sums up a bit of the current knowledge about ME and LDN, but doesn't conclude regarding efficiency. However, I hope it gave my doctor a bit overview of the theme. He agreed to try...

Thought others too might find it interesting to revisit Kjetil Gundro Brurberg's text for "The Mental Elf" in 2017. He criticised the Journal of Health Psychology's edition on PACE (where he coauthored an article that got rejected) and an editorial by dr. Geraghty. quote: The take home...

Article in Cell Reports Medicine from Bergen, Norway about Long Covid. The article discusses among other relationship between Long Covid and other post-infectious syndromes and mentions CFS. One of the authors, Nina Langeland, has researched an outbreak in Bergen in 2004 of the parasite Giardia...

Kyodo News FEATURE: Reduced brain function, immune disorder a possibility of "long COVID" Quote: The center has long studied chronic fatigue syndrome, which causes various symptoms such as extreme fatigue and body aches. The presence of autoantibodies that disrupt the function of autonomic...

This article in Dagsavisen says that Eva Skovlund (who used to do research with prof. Wyller) is replaced with a Jo Røslien, both professors in medical statistics. He's been a guest lecturer at King's College London and has an honorary title at the medical faculty in Aalborg, Denmark.

Yes, you are right! Nina E. Steinkopf wrote the following blog post with correspondence from The Research Council of Norway (Forskningsrådet) setting a deadline for ethical approval by December 2022...

Tuller comments on Twitter: A whine of anguish from people confronting increasingly successful opposition to the ideological perspective they have been promoting for a long time. The arguments about patients and NICE ignoring the evidence are classic Freudian projections.

I read between the lines that they've tried to get an article published, but were asked to submit an opinion letter instead. ETA: But it's nicer to say that the editors invited them to write, and I already see LP coach Live Landmark refer to the comment as published in the Lancet (as if it was...

The tabloid newspaper Dagbladet has written an article about the Lancet comment. It's paywalled, so here are some translated quotes:: Title: Fear ME sufferers will lose important treatment Research director Signe Flottorp of The Norwegian Institute of Public Health believes the changes in the...

Statement on Twitter from the ME Association on the Lancet comment. And a comment from prof. Kunst reminding that it's not an editorial

Medscape Promising Leads to Crack Long COVID Discovered Quote: Other investigators are proposing "immune exhaustion" in long COVID because of similarities to chronic fatigue syndrome, Hornig said. "It should be 'all hands on deck' for research into long COVID," she said. "The number of...

This email from 2020 from Signe Flottorp, research director at The Norwegian Institute for Public Health, resurfaced today on Twitter. I had forgotten it. It's sent to Miek Jong, Head of Norway's National Research Center in Complementary and Alternative Medicine (NAFKAM). NAFKAM defined...

Yes please. Thank you!

The Lancet New NICE guideline on chronic fatigue syndrome: more ideology than science? Signe A. Flottorp, Kjetil Brurberg, Per Fink, Hans Knoop, Vegard B B Wyller Article is paywalled other than this text (references removed): The National Institute for Health and Care Excellence (NICE) in the...

Bloomberg What Experts Know About 'Long Covid' and Who Gets It quotes: Some researchers say the pandemic represents an emerging global crisis, potentially spurring a raft of long-term problems such as chronic fatigue syndrome, dementia, Parkinson’s disease, diabetes and kidney impairment. ...

Moved post Trial by Error by David Tuller My Exchange of Letters on Amygdala Retraining, That Undead Lightning Process Study quote: What I find perplexing—even more than the deficiencies of the study design–is that an ethics committee would approve a trial touting itself as investigating...

Copied post Trial by Error by David Tuller My Exchange of Letters on Amygdala Retraining, That Undead Lightning Process Study quote: What I find perplexing—even more than the deficiencies of the study design–is that an ethics committee would approve a trial touting itself as investigating...

MECFSnet Webinar - Columbia University, Center for Solutions for MECFS Description: In this webinar, Dr. Ian Lipkin and colleagues at the NIH-funded Collaborative Research Center at Columbia University provide an update on their research progress. Tweet from Center for Solutions for ME/CFS...

oh, that's wonderful! Great that they are finding their way into media articles!

JOSPT Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 2: Physiological Characteristics During Acute Exercise Are Abnormal in People With Postexertional Symptoms Excacerbation by Todd E. Davenport, Staci R. Stevens, Jared Stevens, Christopher R. Snell, J. Mark...