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Personally, I think I share some of @fivetowns concerns, and don't agree with the heavy emphasis on the psychological vs physical emphasis of the blog, which I think can end up distracting from problems with the way the PACE researchers behave. There are a range of approaches within the...

This is the version here: http://news.trust.org/item/20190313104914-k085q It says: "(Edits 31st par to remove reference to website)"

Anyone going must raise concerns about Bristol's role in misleading claims and junk-science like SMILE!: http://www.virology.ws/2017/12/13/trial-by-error-the-smile-trials-undisclosed-outcomes/

Ryan's piece was not written to defend against criticism from the PACE trial researchers imo. If she'd just changed a few words it could have been a lot stronger. A bit of an annoying missed opportunity tbh.

I think that it's always worth trying to criticise one another's work. If we want to effectively challenge people like Wessely then there is no room for claims that go beyond the evidence, or any sort of error. If we're not trying to find and remove any possible criticism of advocacy efforts...

Contributory factor could end up being applied quite variably and widely. eg if someone killed themselves could chronic ill health be a contributor factor?

Yeah, but the trouble is that Ryan didn't justify her claim with reference to all that, but with a Liddle quote saying “that their complaints about a virus have no basis in fact”. I can see how that would make some readers think that Ryan was being unfair.

Any response would need to be very carefully done. I'd rather have the charities stay quiet than rush out something that got the politics wrong. It probably would have been best to put out a brief joint statement but we're in a difficult situation and I understand that rapidly putting together...

An important difference being that this is in the US. The UK seems far more committed to covering problems up.

Why do you use the code box? Is it to stop it turning into a link? But why? Ta.

All those papers were two years ago? That's such a long time. Progress since then feels so slow! Thanks for all your work. This was a really useful paper on a difficult topic.

Thanks for the excerpts. A brief mention of PACE rom the same author: https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience

I once spent about 4 hours trying to make use of youtube's auto-subtitle feature to get a transcript, before giving up and just doing it by hand. I'm sure that there must be technological ways of doing this, but I'm so bad at making use of it, and so long as I'm unwilling to pay for any...

I was a bit disappointed by this (I think Frances Ryan writes a lot of really good stuff, especially by the standards of the Guardian, so had quite high expectations). There are good things about it, but also parts that encourage the unhelpful narrative that has already been promoted by Wessely...

Are you sure? Where was that? Doesn't sound right with MAGENTA and FITNET-NHS going on.

It would have been funnier if the botched way the Chalder Fatigue Questionnaire was put together hadn't had such an important impact on CFS research!

Topple acknowledged and apologised for past anti-semitic conspiracy trash in 2016: https://mrtopple.com/2016/03/20/apology/ I think that he should have learnt of the need to be more cautious and careful with the way he writes, as well as just realising that he shouldn't trust those promoting...

There were recent papers on this, but their study will have been designed a while back, and they were following up on there own work that indicated there might be something there. To me it seems worth trying to follow up on those sorts of things.

Thank you so much for that. I find it painful transcribing just little paragraphs I want to quote, so going through the whole lecture will have been an amazing chore.

It is widely used. I don't think that any of the criteria available are amazing, and I expect that they will all be superseded as research (hopefully) progresses. Ideally we'd be able to get funding for research that allowed for sample sizes large enough that even if problems only related to a...