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  1. Esther12

    Trial By Error: Stupid Studies

    Still worth trying to get as few people to hate us as possible while informing them of the truth!
  2. Esther12

    Trial By Error: Stupid Studies

    Given the amount of press coverage the “mindfulness-based cognitive behavioural intervention program for CFS/ME” study got one could argue that it really warrants a 10,000 word thorough take down. But at the same time, who would want to do that post-PACE? This is why we keep needing a steady...
  3. Esther12

    Trial By Error: Stupid Studies

    I wondered if the 'stupid studies' title could be unhelpful for reaching out to the persuadable middle when I first saw it, but at the same time, that such a short blog could so easily pick apart two studies is ridiculous. Is there value in trying to be polite about these things? If so it's a...
  4. Esther12

    Trial By Error: Stupid Studies

    Although there will almost certainly be an attempt to present any challenging question as 'harassment', so it would probably need to be very carefully done to be of benefit!
  5. Esther12

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Are you attending the talk? I don't know. Bishop co-wrote that really annoying Nature piece that indicates she had no real understanding of the problems around PACE: http://statmodeling.stat.columbia.edu/wp-content/uploads/2016/02/Lewandowsky-Bishop-2016-Nature.pdf She had also co-arranged...
  6. Esther12

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    She'll be able to quote from Montgommery's BS HRA letter to pretend PACE critics were all misguided without addressing any of the real criticism. I suspect most of the audience will be stupid enough to fall for it.
  7. Esther12

    King's Health Partners, "Medically Unexplained Symptoms A Practical Guide", March 2017

    https://www.hee.nhs.uk/sites/default/files/documents/Resources%20for%20High%20Intensity%20Therapist%20courses.pdf I thought I got the above link from this thread, but can't see it now. Guide for IAPT promoting CBT/GET for CFS, using PACE manulas and the Lancet PACE paper as the only supporting...
  8. Esther12

    Trial By Error: Who Has the School Study Documents?

    Possibly - I just wasn't sure if there'd be any downside to posting the e-mail and his contact info on a public forum. I know a lot of those corporate e-mails include 'not to be republished' small print, but I don't really know what is seen as the done thing, so just thought I'd mention it for...
  9. Esther12

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    But it's my own informed decision to self-actualise as an awesome pink bear with a bright and cheering rainbow.
  10. Esther12

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    I guess that relates to my discussion with @Diane O'Leary and my view that a lot of the important ethical problems surrounding ME/CFS cut across the psychosomatic/biomedical divide. I don't see a clear divide between the sort of psychosocial management we see from the biopsychosocial lot and the...
  11. Esther12

    Dr Sarah Myhill on The ME Show (series 2, episode 6)

    Myhill has a history of making misleading claims. It's unhelpful but I'm not sure that there's much we can do about it.
  12. Esther12

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    I think that my comment came across as more wide ranging (and insulting!) than I intended. Sorry. I am pleased to see you posting here and appreciate you sharing your views. I was talking specifically about the bit I quoted: "NICE diligently avoids language that sounds psychosomatic because...
  13. Esther12

    Trial By Error: Who Has the School Study Documents?

    Ta Suffolkres. Any reason to just summarise the e-mail rather than post it on a public forum? I don't know, but thought I'd check with you.
  14. Esther12

    Feasibility RCT of cocoa for fatigue in MS (2019) Coe et al

    They funded it, so they're hyping it! "Funder name Multiple Sclerosis Society" http://www.isrctn.com/ISRCTN69897291
  15. Esther12

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    I take your point that Wessely and co often seem to be playing a language game around psychosomatic/functional/MUS/etc... but they have been playing this game and I think that means that it's a mistake to just use the 'psychosomatic' label to apply to all their work/treatments when they haven't...
  16. Esther12

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Thanks Diane - I thought I'd just add a few points. Are there any quotes from NICE where it says that they only provide 'psychosomatic' care? Are there any quotes from IOM, NIH or CDC where they say that the UK is on the wrong side? I worry that 'psychosomatic' can be used as a label that...
  17. Esther12

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    I've just re-read this blog, and I think the psychosomatic/biomedical divide is unhelpful and gets in the way of exploring the ethical problems with the way patients are treated. This approach leaves a lot of room for Wessely and co. to play word games that makes them seem sophisticated in ways...
  18. Esther12

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Also, I think that an acknowledgement of the problems with PACE/GET/etc would undermine the reptutations and careers of a lot of key people. I don't think it's something that the BPS movement could rapidly bounce back from (which could be one reason why they're fighting so hard to save their...
  19. Esther12

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    "Debate about ME/CFS management must now be focused on the risk of denying access to biomedical care for patients suffering from serious disease" I don't think that this is right, at least, not until we have more useful biomedical care. During PACE patients were meant to be provided with...
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