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I just had a quick look at this, so here are some notes. They say a higher IQ is a risk factor for CFS? Was that just from the one study where they assumed low IQ would be a risk factor, found a higher IQ was associated with diagnosis, and then said it was a trivial finding? (They lumped all...

Bleurgh.

That's more about their treatment model than a natural association. It is all so complicated though, especially when they seem to try to imply that any natural association has implications for treatment. I'm not sure I've ever looked closely at those early papers that did claim to find an...

@Michiel Tack I'd start a PM conversation and give people the ability to invite others - I'm sure you should be able to get some advicefrom someone on here. Thanks for taking a look at this.

AAArgh!

That Landmark piece looks like it's back up (not sure if there are any differences to what came before) - google translate here...

I was nudging you!!

Thanks Trish. Sounds like it could be worth a letter to the journal summarising those points?

Looks like he's a close friend of White's who doesn't know much about medical research so I don't think it's worth putting effort in to convincing him his old friend is a quack.

If the MRC wants to attract more high quality researchers it would be helpful if we could move on from the reputation ME/CFS still has as an antagonistic quack-fest, and that would require them to acknowledge and apologise for their past mistakes. So long as they try to ignore the problems with...

It's been discussed before (this is where they discuss the NICE guidelines recommending CBT and GET, but no mention of APT or SMC), but I feel like there's always new bits that seem odd when re-reading old PACE info. eg they told participants: Seem a bit of an odd thing to do. Also, this was...

Was just reading the author's response to Bramsen... it's pretty irritating: https://academic.oup.com/brain/article/132/6/e111/322964 Probably should be posting it as no-one will do anything about it now other than get frustrated... gah!

While people like Wessely are involved in their judgements about the ethics of mass data collection I'm left feeling wary. I also think that this sort of proposal will mean that those who do not want to give the government access to their DNA will find it harder to access genetic testing on the...

I thought I'd post Tuller's piece on the FINE trial as useful context to Wearden's work and the RCGP's decision that she should be leading their attempts to educate GPs about ME/CFS...

Got to agree with all of the concerns raised here about Action for ME's involvement. It sounds as if they're undermining other groups efforts to make progress (not saying this is intentional), and what do we get from them? Seminars for GPs from Hazel O'Dowd...

This sounds deeply creepy to me.

Thanks for making that submission. I suspect that we will face more prejudices & cultural problems in 'health' than in 'science'. I actually expect that an independent inquiry would have gone against us up until very recently, when maybe there has been a shift in consensus. I've always been a...

I feel like I should be reading all that stuff and making notes. At the same time, I am certain that I do not want to. We need a group of people working full time on this.... but the only institutions paying people to work full time on it are those looking to downplay the problems! We had an...

I've not had a chance to look at the survey yet but just wanted to say 'welcome' and send best wishes to @aguilarj2 As others have said, we tend to be quite critical of everything here, in a way that's probably a bit unusual and could seem inhospitable. If you stick around then I expect you'll...

Thanks a lot for that pdf file. I forgot what format I was looking at previously, but I remember it being a pain and kept having different bits become inaccessible.