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  1. Arnie Pye

    BPS attempts at psychologizing Long Covid

    What do we know about long Covid? Above link is to an article dated 18th August 2021 from the British Heart Foundation. An excerpt, describing GET as pacing...
  2. Arnie Pye

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Ditto for me. They worked for my father too. He made dowsing rods out of old wire coat hangers. I still wonder if I did something unconsciously to affect the result in some way.
  3. Arnie Pye

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    Just found this reference to the Clock study (by accident, I wasn't looking for it deliberately!) : Edit : https://twitter.com/EricTopol/status/1433059147138748419 For anyone without a Twitter account, to see the whole thread click on the first sentence, where it says "This doesn't look good".
  4. Arnie Pye

    Myths and Truths about Placebo Effect in Rehabilitation for Musculoskeletal Pain, 2021, Iolascon and Moretti

    There is a popular belief amongst the privileged that being born out of the right vagina automatically makes them entitled to lots of money, makes them cleverer than people who came out of non-rich vaginas, and makes them more stylish too.
  5. Arnie Pye

    Chronic Fatigue Syndrome and Cardiovascular Disease: JACC State-of-the-Art Review, 2021, Natelson et al

    On the subject of blood volume in ME this link, and the links within it, might be of interest : https://www.healthrising.org/treating-chronic-fatigue-syndrome/enhancing-blood-volume-in-chronic-fatigue-syndrome-mecfs-and-fibromyalgia/ [I'm not suggesting that any of the suggestions work - I've...
  6. Arnie Pye

    GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

    Is there another meaning to "cupcake" other than the obvious one?
  7. Arnie Pye

    Bleeding heel fissure

    I don't have any suggestions other than decide what you want to try from all the advice on the web or see a doctor or podiatrist/chiropodist or pharmacist. Just don't ignore the problem. I had a university friend who ignored her severely cracked heels and her entire heel separated from her...
  8. Arnie Pye

    Guardian Article on NICE pause

    I thought the psychiatrist Prof Peter White was sometimes referred to as Peter D. White. (D for Denton - dunno where I got that snippet from.) The person I assume is a patient has never had a middle initial mentioned or any kind of title (edit: that I've ever seen).
  9. Arnie Pye

    What we're not being told about ME - UnHerd (Tom Chivers)

    I don't know any numbers, sorry. Both CFS and ME crop up fairly frequently on the thyroid forum I read, and I've noticed that more and more people with thyroid disease are saying that they have been diagnosed with CFS. Far fewer say they have been diagnosed with ME, and those who have been...
  10. Arnie Pye

    What we're not being told about ME - UnHerd (Tom Chivers)

    I've only started making this distinction in recent years - but I think there are people who are journalists and people who are reporters. Or there are people who switch from one to the other and back again depending on what their remit is for a particular piece of work. For example, 99.9% of...
  11. Arnie Pye

    Medically unexplained symptoms: assessment and management (2021) Mujtaba Husain and Trudie Chalder

    One thing that has never occurred to me until just now is : Who makes the MUS diagnosis? Is it a GP? A doctor in secondary care? Can someone be seen by a GP, get given an FBC (Full Blood Count), and end up being sent straight to an MUS clinic without being seen by secondary care, do not pass...
  12. Arnie Pye

    What we're not being told about ME - UnHerd (Tom Chivers)

    I think Tom Chivers has been used in the position of "useful idiot" by his unnamed sources. In this case the people using him are those representing the Royal Colleges. From the unherd article : The only thing about a new definition I can come up with is that the people supporting BPS and...
  13. Arnie Pye

    Sense about Science (UK) and subjective outome measures

    That tweet from Sense About Science (2 posts before this one) saying that subjective measures are welcomed by patients is absolute nonsense. It is just a way for the medical profession to stop actually trying to cure anyone, and to make a blanket prescription of anti-depressants and exercise to...
  14. Arnie Pye

    Harassment claims in the media and social media.

    I don't think the UK has such a body as "campus police" with different legal rights, duties and responsibilities to the ordinary police.
  15. Arnie Pye

    Article: The coming battles over long-haul COVID-19 and long-term disability

    I agree. But I've never been clear on why doctors are so happy to go along with this. The number of apparent sadists in the profession is enormous.
  16. Arnie Pye

    Post-Covid-19 Tachycardia Syndrome, 2021; Ståhlberg, Fedorowski et al

    Title : Anemia and iron metabolism in COVID-19: a systematic review and meta-analysis Link : https://pubmed.ncbi.nlm.nih.gov/32816244/ Abstract Iron metabolism and anemia may play an important role in multiple organ dysfunction syndrome in Coronavirus disease 2019 (COVID-19). We...
  17. Arnie Pye

    Twitter issues

    Yes, I know. I don't have an account. But until today this has never mattered when all I wanted to read was public tweets. But now this has been blocked.
  18. Arnie Pye

    Twitter issues

    I just discovered that independently. :) :thumbsup:
  19. Arnie Pye

    Twitter issues

    I just succeeded! I had to open the page it was originally posted on by Adam. Then I right clicked on the picture of the article and chose to open it in a private window. I have a full-sized desktop PC, not a mobile device. But until they shut down the private window option, which I'm sure...
  20. Arnie Pye

    Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescents and Young Adult Cancer Survivors? 2021, Fauske, Reme et al

    I agree - but how much info is given to the people who do the approval on this type of work? Perhaps they know nothing about LP apart from the fact that no drugs are involved? Since CBT and other psychological treatments are considered safe by most people perhaps the assumption is made (without...
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