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  1. Arnie Pye

    Influence of Priming on Patient-Reported Outcome Measures: A Randomized Controlled Trial, 2016, Claessen et al.

    That positively adjusted PCS appears to have been written by someone who has led a charmed life, has never felt pain, and has never even stubbed their toe. If I saw a doctor or therapist who asked me those questions I would probably get up and leave because I would assume the person was making...
  2. Arnie Pye

    Article series in Guardian, June 2021: The pain that can't be seen. (chronic pain, Long Covid, ME/CFS)

    From your final quote : This idea fails logically in the case of endometriosis. If nociplastic pain occurs in conditions in which tissue damage is non-existent or not visible then how can surgeons ever declare that they have found "very severe endometriosis", and what makes that different from...
  3. Arnie Pye

    Article series in Guardian, June 2021: The pain that can't be seen. (chronic pain, Long Covid, ME/CFS)

    Which of the links above did this reference to "nociplastic" pain come from?
  4. Arnie Pye

    Article series in Guardian, June 2021: The pain that can't be seen. (chronic pain, Long Covid, ME/CFS)

    Another couple of articles in the same series - "The pain that can't be seen", one of which is about ME/CFS What is chronic pain and how does it work? – video explainer ‘I felt betrayed’: how Covid research could help patients living with chronic fatigue syndrome The entire series of...
  5. Arnie Pye

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    All that the author is telling me in that link is that she despises patients. But it also tells me that, when patients feel ill, physically or mentally, they desperately want to know what is wrong with them, and I think this is entirely understandable and reasonable but doctors, and society...
  6. Arnie Pye

    BPS attempts at psychologizing Long Covid

    @Kalliope Who is that man in the video in post #845? I checked out his channel but he doesn't answer the question directly in the "About" section of his channel, he tells people to go and watch one of his videos without answering the question. https://youtu.be/FULycGPmN18
  7. Arnie Pye

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    Women with endometriosis plus many other common gynaecological problems. Articles with titles like this one get published on the subject : https://www.theguardian.com/commentisfree/2017/mar/22/do-mad-people-get-endometriosis-or-does-endo-make-you-mad Edit : Missed out a word.
  8. Arnie Pye

    Interventions that manipulate how patients report symptoms as a separate form of bias

    That is a really good comparison to use when telling people people are being told their lived experience of poor health is "wrong", and it could be useful in future. Thanks. Edit : I managed to confuse myself...
  9. Arnie Pye

    Interventions that manipulate how patients report symptoms as a separate form of bias

    Perhaps it is just me then. It seems to me that a huge percentage of people I come across online or in real life are on anti-depressants or whose doctors have blamed their symptoms for many different medical conditions on mental illness. It is rare for patients to ever be taken at face value and...
  10. Arnie Pye

    Interventions that manipulate how patients report symptoms as a separate form of bias

    My bold : I must admit I don't actually believe that there are so many psychologically or mentally ill people around as BPSers want us to believe. When I was growing up there were a very few people I met who were considered to be "a bit odd". I suppose society and people have changed in my...
  11. Arnie Pye

    Explanation for excessive generalized edema?

    Since the condition is progressive (it slowly destroys the thyroid) you should ask for your thyroid to be re-tested once a year or once every two years. Having just TSH tested is not enough to exclude thyroid disease - you would need to have Free T4 and Free T3 tested as well.
  12. Arnie Pye

    Explanation for excessive generalized edema?

    Could your problem be myxedema (US spelling, or myxoedema UK spelling)? https://en.wikipedia.org/wiki/Myxedema The swelling in hypothyroidism or other forms of thyroid disease is neither water nor fat - it is mucin. https://en.wikipedia.org/wiki/Mucin...
  13. Arnie Pye

    Use of antidepressants for/with ME/CFS?

    Wow. Impressed by the RCP I am NOT! How many years have they been ignoring patients on this subject, I wonder?
  14. Arnie Pye

    Data suggest severe pediatric asthma cases dropping massively as a result of pandemic

    BIPOC = Black, Indigenous, (and) People of Colour is one possibility I found.
  15. Arnie Pye

    Central Sensitivity and Fibromyalgia, 2021, Mezhov et al

    I've never understood why temporomandibular disorder is considered to be a "central sensitivity" issue or a "functional pain syndrome". Why are jaw and facial muscles and nerves not allowed to become inflamed without blaming the patient in some way?
  16. Arnie Pye

    Covid-19 vaccines and vaccinations

    Thank you for mentioning that, it's reassuring. I was thinking silly things like "Am I fat enough for the longer needles?" "Will they touch bone and really hurt?" "Could they poke me in major arteries by mistake?" :D
  17. Arnie Pye

    Covid-19 vaccines and vaccinations

    For people who are overweight or obese this article on vaccination is important to know - not just for Covid but any future vaccination you might get. https://www.theguardian.com/commentisfree/2021/jun/14/even-when-getting-vaccinated-against-covid-fatphobia-runs-rampant I am curious about...
  18. Arnie Pye

    The obesity wars and the education of a researcher: A personal account, 2021, Flegal

    In post #2 above I mentioned the Twitter thread that I got the link from for this particular thread. I just went back and looked at some more of that Twitter thread and came across this - it's jaw-dropping!
  19. Arnie Pye

    The obesity wars and the education of a researcher: A personal account, 2021, Flegal

    I should point out that I found my way to the above paper via this tweet : And from that Twitter thread I got to this blog post, which is really quite funny : https://eathropology.com/2013/11/15/make-me-some-science-i-cant-refuse/
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