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I should add to this, that it also made me believe that a big chunk of the medical profession is malicious and really nasty, a belief that I've never really had much reason to alter throughout my life.

This happened to me. All it achieved in the beginning was giving me an inferiority complex. It didn't make the pain any easier to cope with.

There is a condition called tetany. It might be worth looking into if the symptoms sound anything like what your daughter is describing.

One of the problems I have with the idea of counselling or therapy of any kind is that it doesn't actually change anything. It won't change the opinions of the people who can make a difference to my quality of life, it won't undo the decades of neglect, it won't prevent neglect in the future...

@Adam pwme Your video came up in a different context to ME elsewhere on Twitter today : https://twitter.com/TheIronProtocol/status/1397002410212614148

I think this applies to more than just ME patients, I think it applies to dozens of medical conditions. For example, how many doctors and family members, on learning that patient X has cancer, start seeking reasons that blames patient X for what has happened? In other words the first reaction of...

At least they mention they are using relative risks - researchers sometimes fudge whether they are using relative or absolute risk or numbers. It would have been nice to see what the absolute risks and numbers were as well as the relative numbers/percentages. So for example, using some...

I have heard and read multiple anecdotes, not just from people of school age, but from university students too, that expressing an opinion on a subject that was different from the teachers / lecturers would get marked down and/or failed. So I think your interpretation of the rules was most...

This sounds very like part of my own experience of what I call "brain fog", although I am aware that brain fog is not necessarily the same condition in everyone. This afternoon, for example, I had received an Amazon parcel. My usual practice is to cut out my name and address from the cardboard...

Apart from his temporary confusion (which I didn't witness because I was asleep myself) when waking up yesterday, he has been his totally normal self, and there wasn't a recurrence today. He's able to do his favourite hobby (painting), hold conversations, read, help with the cooking and go for a...

No, he says that he feels fine and has had no other effects at all. It could just be a coincidence that this happened the day after his 2nd jab.

I'm posting about my husband, not me. He had his second injection (AZ) yesterday. Have you ever woken up and in the first few minutes felt very confused, had no idea what day it is or what time of day or night it is or what the date is? I get this often. I've even, on rare occasions, been...

I don't see that as definitive proof of anything, to be honest. I had shocking chest pain as a result of severe iron deficiency anaemia. This page from the NHS doesn't mention chest pain as a possible symptom of iron deficiency anaemia. https://www.nhs.uk/conditions/iron-deficiency-anaemia/...

These links suggest that some people who suffer trauma of various kinds may suffer measurable effects on their cortisol levels : Long term effects of childhood trauma on cortisol stress reactivity in adulthood and relationship to the occurrence of depression Effect of previous trauma on acute...

I think there are far more stresses on the human body than just the things I mentioned in post #5. So, low or high cortisol, low or high adrenaline levels, low or high sex hormones, low or high vitamins and minerals, a diet too low or too high in fat, protein or carbs will probably stress the...

I'm a bit baffled by this... According to Dr Myhill's own website she is "Deregistered from the General Medical Council" And yet her entry on the GMC register suggests her registration is still current. https://www.gmc-uk.org/doctors?text=sarah myhill Edit : Oops - I see my confusion has...

I assume that any kind of trauma - dramatic and severe, or milder but frequently repeated - e.g. being raped or tortured or suffering domestic abuse, or suffering from chronic pain or being bullied at home, school or work will raise cortisol. If the trauma is not resolved or can't be stopped...

This article presents the potential benefits of providing literacy-adapted psychosocial treatments to expand pain conceptualization beyond a biomedical-only understanding and toward a biopsychosocial conceptualization of the experience of pain. Furthermore, the association of changing pain...

That link no longer exists. What a surprise.

"The Chronic Illness Survey Adventure" Using the word "Adventure" in this makes it sound like it's fun to have a chronic illness. I think it's insulting.