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  1. Arnie Pye

    Call for doctors to clearly declare any funding from industry

    Thanks, @Invisible Woman. I understand now. :D
  2. Arnie Pye

    Call for doctors to clearly declare any funding from industry

    @Invisible Woman Sorry, but I got confused. Who was on the board of the private rehab clinic? Your GP or your consultant or the consultant that the GP consulted? And were the two consultants referred to the same person? :walkingdead o_O
  3. Arnie Pye

    Did the Spanish flu cause ME?

    Short article on the long-term effects of Spanish Flu on people who were in utero during the height of the pandemic. The effects of the Spanish Flu could be detected in health statistics decades later...
  4. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Title : Why I'm sceptical about the NHS's coronavirus recovery service Subtitle : I’ve seen firsthand how years of underfunding have left our health service struggling to treat long-term conditions Author : Frances Ryan Link ...
  5. Arnie Pye

    “I Need to Start Listening to What my Body Is Telling Me.”: Does Mindfulness-Based Cognitive Therapy Help People with CFS?-Bridie O'Dowd July 2020

    Given that sick people are assumed to be at fault for spending too much time thinking about their bodies and their symptoms, doesn't mindfulness actually encourage that preoccupation? I've never understood how meditation and mindfulness actually work or what they are supposed to achieve, so I'm...
  6. Arnie Pye

    Symptoms of Covid-19

    Title : Warning of serious brain disorders in people with mild coronavirus symptoms Subtitle : UK neurologists publish details of mildly affected or recovering Covid-19 patients with serious or potentially fatal brain conditions Link ...
  7. Arnie Pye

    Dehydration-like feeling next day after exertion?

    When I feel dehydrated on waking up I drink water with a sachet of rehydration powder in it. It is intended for use after people have the runs but I use it just to help myself to feel better. I suspect I'm running low on electrolytes when I wake up thirsty.
  8. Arnie Pye

    Trial By Error: CBT and Irritable Bowel Syndrome

    Info on the author : With an author like that there is simply no chance that physical health problems would ever be considered as a cause of IBS. And what about people with undiagnosed IBD? It can take decades to get a diagnosis of that, all the while being dismissed as suffering from IBS. I...
  9. Arnie Pye

    Trial By Error: CBT and Irritable Bowel Syndrome

    Based on my own personal experience, I know that "IBS" can be cured. I needed surgery to deal with immense amounts of scarring and adhesions from delayed and botched surgery in my early teens. Once that was done (it only took roughly 30 years), my IBS problem was 95% cured. Doctors see IBS as a...
  10. Arnie Pye

    Treatment for hyperthyroid

    You could pay for a finger-prick test of your thyroid hormones. Medichecks and Blue Horizon are very popular on the thyroid forums I read : https://medichecks.com/collections/thyroid https://bluehorizonbloodtests.co.uk/collections/thyroid-blood-tests Note that some tests require only a...
  11. Arnie Pye

    Treatment for hyperthyroid

    The absurd thing about Levo is that according to the BNF (British National Formulary) doctors should retest every three - four weeks after increasing dose. Some doctors do this, but from reading on thyroid forums it is quite rare. What actually happens in many cases is that doctors start at...
  12. Arnie Pye

    Treatment for hyperthyroid

    In that case you would need to get tested at the time of day that your TSH is at its highest - which would be around 7am - 9am. Since doctors usually insist on using a single, fluctuating, not very reliable measure of thyroid activity such as TSH to decide everything thyroid you have to use it...
  13. Arnie Pye

    Treatment for hyperthyroid

    Thyroid hormones and TSH can and do change every minute of every day. TSH and T3 have a circadian rhythm. Take a look at the graphs on page 2 in this paper : Title : Free Triiodothyronine Has a Distinct Circadian Rhythm That Is Delayed but Parallels Thyrotropin Levels Link ...
  14. Arnie Pye

    Psychiatric and neuropsychiatric presentations associated with severe coronavirus infections, 2020, Rogers et al

    Interesting (but unsurprising) thread on Twitter from an ME sufferer called Dan Wyke : https://twitter.com/Dan_Wyke/status/1277522836148686854 Clicking on #longcovid comes up with lots more of the same.
  15. Arnie Pye

    Psychiatric and neuropsychiatric presentations associated with severe coronavirus infections, 2020, Rogers et al

    This is not a "proper" article - it is just described as a "coronavirus update". Personally, I suspect the numbers quoted are all absolute bilge, but they allegedly come from various mental health and children's charities. Source ...
  16. Arnie Pye

    Treatment for hyperthyroid

    I've never been hyperthyroid. If you don't tolerate carbimazole then the main alternative in the UK is propylthiouracil (PTU). In the USA the first-choice anti-thyroid (AT) drug is methimazole for humans and carbimazole for hyperthyroid animals, for some unknown reason. I don't know what...
  17. Arnie Pye

    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    I agree that they should be up in arms - but endocrinologists have been dismissing patient symptoms for decades. The idea that the thyroid isn't really underactive until the TSH is > 10 is totally sadistic. But healthy people with healthy thyroids have a TSH, on average, of about 1.2 I...
  18. Arnie Pye

    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    @Kalliope 's posts explain the likely future treatment for thyroid conditions in this thread, specifically posts #8 and #19 : https://www.s4me.info/threads/general-thread-on-functional-disorders-in-denmark.13820/
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