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I don't always see what's right in front of my nose these days. I'll blame it on my health and old age.

Okay, a quick skip through that thread makes it sound to me like it is a way of finding the shortest route from patient to therapist possible, bypassing everything and everyone else. I didn't have the heart or the energy to give it a close reading, because it's quite a long thread.

What does the acronym PSP mean in the first post?

From a quote in the first post in the thread : So, in 70 - 90% of visits to doctors, the doctors know exactly what the patient's symptoms are caused by and what is wrong with the patients on first presentation? That astonishes me. It sounds like completely arrogant crap to me.

The problem with weird treatments like cupping is that people in Western medicine have no experience of using it and I'm guessing the requirements (in terms of training) for offering this as a treatment are probably non-existent or very low, unlike being a doctor. The person whose back is...

Nothing would induce me to try this treatment for any reason whatsoever.

I was diagnosed with a Group B streptococcal infection after I got bits of me swabbed and cultured because of a recurring rash. This is allegedly only dangerous to newborn babies, the elderly, and people with compromised immune systems. Since I wasn't in that group of at-risk people I was...

Conclusions People with ME/CFS and FM perceive aerobic exercise as more effortful than healthy adults, but the exact causes are unclear. The large magnitude of this effect merits further exploration of underlying mechanisms which could provide insight into the pathophysiology of ME/CFS and FM...

When I read the whole article it turns out they are keen to find even more ways of blaming women for their own health problems. And from rvallee's quotes in the previous thread post what on earth are "disruptive approaches" to finding new solutions?

The pressure inside the head from CSF is measured (if only a one-off measurement is required) using a lumbar puncture, it isn't something that can be measured or found out in a GP's surgery. If regular readings of the pressure are needed then the method used might involve the patient having an...

I had treatment for hydrocephalus last year. A hole was drilled somewhere inside my head/brain to allow excess CSF to drain away and reduce the pressure in my head. I did a lot of reading before the surgery (not surprisingly) and discovered that if too much drained away I could expect to get low...

Ah, so your low pressure is in your blood vessels not your CSF? Then I misunderstood, sorry.

Are you, by any chance, confusing the surgery that Jen Brea had done with CSF leaks? They have no relationship that I'm aware of (but I'm not a doctor, so take anything I say with a pinch of salt).

You might find this link helpful : https://www.stgeorges.nhs.uk/wp-content/uploads/2019/03/NEU_CSFLM_01.pdf Title : Cerebral Spinal Fluid (CSF) Leaks and Their Management Written by St George's University Hospitals NHS Trust.

Could you have a CSF (cerebrospinal fluid) leak? They can happen spontaneously. https://en.wikipedia.org/wiki/Spontaneous_cerebrospinal_fluid_leak

I don't know anything about the ONS survey, so I don't know if what I've been asked to do is part of it. I have to do the swabbing myself, and only once as far as I can tell, so it doesn't sound the same.

I received a letter from the NHS a couple of days ago offering me a swab test for active coronavirus. I would have to register with a website online, then undertake some form of survey into any symptoms of Covid I might have as well as general health questions, then I would be sent a swab for my...

From @Dolphin 's link in the previous post... I didn't realise that TATT - Tired All The Time - was considered by the medical profession to be identical to ME or CFS. I'm glad I found out. You never know when this kind of info can be helpful!

I have always thought that group therapy of any kind would be so incredibly intrusive, embarrassing and humiliating that I could never go through with it. The idea that I might spill personal information I don't want to be made public would prevent me from saying anything. Does anyone actually...

Another story of post-covid problems lasting months : Title : Coronavirus: Twelve weeks on I can't kick Covid exhaustion Link https://www.bbc.co.uk/news/uk-scotland-north-east-orkney-shetland-53056785