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  1. Arnie Pye

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Merged thread https://www.theguardian.com/world/2020/may/15/weird-hell-professor-advent-calendar-covid-19-symptoms-paul-garner
  2. Arnie Pye

    JOGO Health Launches COVID-19 Chronic Fatigue Syndrome Study May 2020

    I think Mary Shelley might be within her rights to claim a breach of copyright, if copyright lasted for 202 years.
  3. Arnie Pye

    dry eyes

    You could have this : https://www.aop.org.uk/advice-and-support/for-patients/eye-conditions/meibomian-gland-dysfunction Two people in my family have had very visible lumps developing on the underside of their upper eyelids. They were caused by blocked meibomian glands and both of them had...
  4. Arnie Pye

    CoQ10 - Coenzyme Q10

    That's rather a strange way of testing something. First do a small study where everyone knows what the subjects are taking, including the subjects themselves. Then follow this with a proper RCT. Why not just combine the two pools of subjects and do a larger RCT?
  5. Arnie Pye

    Cortisol and catecholamines tests - low cortisol / addisons?

    I forgot to say... Cortisol testing isn't always testing the same thing. Approx 75% of cortisol found in blood is bound to either a transport protein called Transcortin, or serum albumin. Only a small amount is found unbound in blood. Cortisol found in saliva is unbound. Cortisol found in...
  6. Arnie Pye

    Cortisol and catecholamines tests - low cortisol / addisons?

    Suggested optimal levels for saliva cortisol are given on this link - see example 1 : http://www.rt3-adrenals.org/cortisol_testing.html NICE info on diagnosing and managing Addison's Disease. Click on all the entries in the left hand side of the page ...
  7. Arnie Pye

    Has anybody with ME not contracted Covid-19 even when a household member has had it (or is suspected to have had it)

    This sounds like the symptoms my husband gets when he has (what he calls) a migraine. He doesn't have ME, and his migraines are both rare and are almost or completely pain-free. They last a few hours. Any pain he does get tends to happen when his vision, speech and writing have returned to normal.
  8. Arnie Pye

    The Effect of Parenteral or Oral Iron Supplementation on Fatigue, Sleep, QoL & Restless Legs Syndrome in Iron-Deficient Blood Donors, 2020, Macher

    One obvious question on this research is why are iron-deficient people being allowed to donate blood? I have read that if iron deficiency becomes severe enough it can cause sudden heart failure.
  9. Arnie Pye

    The Effect of Parenteral or Oral Iron Supplementation on Fatigue, Sleep, QoL & Restless Legs Syndrome in Iron-Deficient Blood Donors, 2020, Macher

    iron deficiency may cause more subtle symptoms, including the restless legs syndrome (RLS) There's nothing subtle about having restless legs. It can be torture!
  10. Arnie Pye

    Judy Mikovits

    An addition to my previous post... One thing that does worry me about the internet getting censored in respect of medical information is that it makes it harder for anyone and everyone to put forward a new idea. It's probably too late for big pharma to get rid of dissenting voices about the...
  11. Arnie Pye

    Judy Mikovits

    I don't know anything about ADHD, but I do know that big pharma does invent things. Osteopenia for example. How A Bone Disease Grew To Fit The Prescription
  12. Arnie Pye

    Coronavirus - worldwide spread and control

    Thanks for that information @lunarainbows :)
  13. Arnie Pye

    Coronavirus - worldwide spread and control

    I'm completely out of touch. I find it hard to take things in these days and my memory sucks when it comes to new information. Can anyone give me a link which answers the following questions? What are the tests being touted by the UK government? Are they : Tests for evidence of past...
  14. Arnie Pye

    MSD Manual (US): Chronic fatigue syndrome - updated Apr 2020 and Sept. 2021

    The Merck site has a page for consumers and one for professionals. @dave30th Both of your links in the sentence above go to the Professional Version. I've noticed when reading the Merck site in the past that the links from the Professional page to the Consumer page and vice versa for several...
  15. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Title : The patients who just can't shake off Covid-19 https://www.bbc.co.uk/news/health-52548843 In the last section of the article is this paragraph : Part of the problem is that so much about the coronavirus is unknown, including why some people experience relatively mild symptoms lasting a...
  16. Arnie Pye

    Wider collateral damage to children in the UK because of the social distancing [...] COVID-19, 2020, Crawley et al. And other papers by Crawley et al

    I don't know how accurate these figures are, but apparently in the three months of the run up to lockdown 18.1 million people flew into the UK (I assume many of them were transferring to other flights and flying out again, but I'm only guessing), and only 273 were put into quarantine. Dealing...
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