Search results

So they are weasel wording round the issue that @dave30th highlighted

A bit selfish but I think I’m going to pass.

ME Assn insist on using columns :banghead:

Probably posted that tweet to get a buzz from getting a couple of responses and people actually reading their tweet for a change rather than tumbleweed

No problem they call it the swab test so that’s fine I hadn’t gone on to the website to look at any details possibly this is all explained there.

So did you have to do both nose and throat for the same test - the swab test consists of two separate swabs?

Yep that’s in the letter it’s pretty comprehensive.

Ooh good point @Wonko they should be doing a different study. All/some of the folks who have suspected Cv should be asked to do both.

I’ve had a letter asking if I will take part in a study by Imperial College London comparing two home tests swab of nose & throat vs saliva. It says the swab ‘May cause some mild short lived discomfort’. I’ve heard that it’s quite unpleasant. i feel like I should do it as I’ve been asked...

Blimey that sounds really good. Congratulations to all involved:thumbup:

Think I will have to order a suffragette badge for the avoidance of doubt ;)

Has anyone responded to this? If not maybe worth contacting Tymes Trust for info on youngest children @dave30th

I’ve ordered a mask in suffragette green & purple stripes from radical tea towels not cheap but I will enjoy wearing it.

Heard back from M E Association that they are indeed aware and raising it with authorities.

I bet it did. Made me smile to see your summing up of him for what he really is.

This is making me fume they are just blatant. And it doesn’t give much faith in James Lind surely they should be insistent on the patient engagement side that’s supposedly what they are there for. wondering if @dave30th would be interested in this latest snake from the MUS hydra head.

What patient organisations are involved in this? It should of course be a wide range. But if this is the first we’ve heard of it looks like they are attempting to fly under the radar. How did they recruit the patients? the survey needs sharing by ME organisations. People with ME need to...

Oh good grief can you tell I’m not very ‘alert’ today :whistle: sorry @Robert 1973 and @Simon M

Great work @Simon M :thumbup: hope that raises a few eyebrows

so it’s a pyramid/franchise - not Very successful as it’s been going 15 years and only got 15 locations - assuming it’s one ‘technician’ at each location. https://www.rectoryhealthcare.com/join-our-network/