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They can ask as many written questions as they like although if it’s been answered before the answer can just refer back to previous responses. The responses like replies to MPs letters are put together by junior civil servants. Interesting these have come from a shadow minister the...

I always end up flipping bedcovers off apart from lightweight quilt and feet have to stick out completely can’t be under heavy covers due to heat overall and sock pain also I don’t like the feeling of being tucked in under heavy covers. I think it’s because I probably move around quite a bit.

Should be fined for not publishing

hopefully some of the attendees at the CMRC in March will take the opportunity to ask some very direct questions of the editor https://www.eventbee.com/v/uk-cfsme-research-collaborative-6th-annual-science-conference/event?eid=105083142#/tickets

hi @Hutan this reads well to me. My only suggestion is that information to bring a new topic to a general audience is best pitched at quite a basic level of reading and understanding. You’ve got some uses of the passive voice in there and some terms where you could try using simpler words...

Yes because the person who originally put this booklet together was from a CFS clinic and consciously or unconsciously used the CFS clinic manual as the basis for this booklet. Having the charity’s document and the CFS clinic on the same lines would have reinforced the strength of the messages...

Yes and no unevidenced waffle about how sleep ‘hygiene’ helps. Getting some sleep helps if insomnia is a problem - beyond that everything is individual.

Yes indeed no doubt that as someone who was gradual late onset and had 32 year career I was in a position where I managed to get ill health retirement some snidey psychosomatic proponents would imply I’ve gained from having ME. Yeah right if they want to swap me my pension and my health for...

I don’t know from personal experience what issues teenagers have. Could be a few different reasons why adolescents don’t get picked up especially if ME isn’t severely affecting them. Poor school attendance could be put down to truancy rather than ill health. Not all kids have supportive...

Ah ok see what you mean also if eventually it is provided as NHS service people aren’t directly paying for possibly Advertising Standards would say it’s outside their remit? Ah I see they ruled against a tv ad about Universal Credit recently so remit does cover public sector ads.

I just assumed that if this deal has been announced they will now be in the process of trying to sell it to NHS commissioners not sure if that would be nationally or locally.. It won’t be launched to the public unless they manage to secure a contract/contracts.

I don’t get constipation as I’m able to do quite a balanced diet with plenty of pulses and veggies. However I have noticed that I always feel worst in the morning and going to the loo alleviates some of that horrible all over aching

Well it just shows how nasty and anti research ME patients are again ;)

I’ve talked on other threads about the high chances of a depression diagnosis masking gradual onset ME. This ties in with my experience although it’s not clear cut as I was experiencing grief before I started having the regular viral illness episodes.

In my experience adrenaline is best avoided. Always causes flare ups. Maybe the feeling better morale was due to your meeting anyway if it was positive and helped alleviate some ongoing worries?? I felt a huge relief when my house finally sold after the original sale had fallen through. I...

I see what you mean about safety @Barry I don’t do much hob cooking just soup or scrambled eggs veg stir fry and thinking about it i don’t reckon I need to sit down at the cooker for these short activities. I don’t bother with making gravy or sauce and also given up frying onions and garlic...

I think going in for a try out would be a good idea @Invisible Woman. It looks like they come at a wide range of prices with some fairy cheap ones on Amazon I have added issue of making sure it’s sturdy enough to take my considerable bulk. I might just start off by getting a cheap high...

Duly noted @Wonko and @Kitty re perching stools. My gut feeling was that that wouldn’t work for what I want.

Fair point @Arnie Pye you’re right probably not as high as a barstool but I have got reasonably long legs I’m 1.70m or 5’7” in old money. And it wouldn’t be too bad if I had to get off and push for a couple of seconds as long as I’ve got the something to sit on for the standing still parts of...

Hi looking for any recommendations for a seat on castors to use in my kitchen so I can sit down in front of the work top and cooker to do food prep. My new kitchen is bigger than the old one and there are more steps involved between fridge surface and cooker. Just walking from my seat in...