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  1. Sly Saint

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    same thing happened with the term 'brainfog'; now just about everyone uses it. eta: not as a result of twitter tho'
  2. Sly Saint

    On line ‘survey’ re UK CFS/ME specialist services

    also works a lot with AfME. The 'specialist' service in Bristol https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service/cfsme-rehabilitation-checklist
  3. Sly Saint

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    meanwhile Per Fink has been conducting a similar exercise with BDS and trying to get a WHO classification. and I'm guessing there is probably a Venn diagram somewhere showing how all the 'conditions' overlap in terms of symptoms. I don't think anyone would agree it is 'helpful'. I think it...
  4. Sly Saint

    Psychologists financially ruined after joining failed counselling franchise - July 2019 ABC Australia

    article here: https://www.abc.net.au/news/2019-07-23/life-resolutions-psychology-franchise-liquidation/11285548
  5. Sly Saint

    How a data detective exposed suspicious medical trials

    @sTeamTraen (Nick Brown) gets a mention.
  6. Sly Saint

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    @Jonathan Edwards my goodness you were really on a roll in those comments! Bravo :emoji_clap: Michael Sharpe, Simon Wessely might be interested in this
  7. Sly Saint

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    I see that Prof Eysenck was also presenting see https://www.s4me.info/threads/personality-and-fatal-diseases-revisiting-a-scientific-scandal-2019-pelosi.8311/
  8. Sly Saint

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    precisely, so why feed into it or in effect do the same? It did make a difference to MS sufferers who were on the 'target list' see https://www.s4me.info/threads/government-and-insurance-companies-establishing-the-bps-model.2319/ But like others, even MS patients struggle to get a diagnosis...
  9. Sly Saint

    Clinical and cost-effectiveness of the Lightning Process ... for paediatric chronic fatigue syndrome, 2018, Crawley et al (Smile Trial)

    Chalder 'explains' their approach here https://www.s4me.info/threads/13-march-2019-chalder-‘medically-unexplained-symptoms’-my-clinical-and-research-journey-over-30-years.5576/page-3#post-152193 eta: Crawley's take https://www.s4me.info/threads/esther-crawley-what-drives-her-plus-quotes.1139/
  10. Sly Saint

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    Moderator note: This discussion has been moved from this thread: Concerns about craniocervical instability surgery in ME/CFS
  11. Sly Saint

    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    not about harms but related to 'monitoring' of IAPT clinics (from CBTwatch) http://www.cbtwatch.com/
  12. Sly Saint

    Rethinking ME/CFS Diagnostic Reference Intervals via Machine Learning & Utility of Activin B for Defining Symptom Severity (2019) Lidbury et al.

    Looked up 'Random Forest modelling' on wikipedia ....none the wiser, way too complex ; I was hoping for something more along the line as 'life is like a box of chocolates':confused:
  13. Sly Saint

    My podcast: Medical Error Interviews

    there is a large duplicated chunk of audio at the end that you might want to edit out(?) also it's quite difficult to hear Brian at the very beginning (audio not so good) particularly with the music in the background. hopefully constructive criticisms:)
  14. Sly Saint

    USA: Disability Insurance for ME/CFS

    another youtube video (seems well informed) Social Security Disability Benefits For Myalgic Encephalomyelitis | Chronic Fatigue Syndrome
  15. Sly Saint

    The Development of the DePaul Symptom Questionnaire: Original, Expanded, Brief, and Pediatric Versions, 2018, Jason

    The development of a short form of the DePaul Symptom Questionnaire 2019 Jul 18 https://www.ncbi.nlm.nih.gov/pubmed/31318234
  16. Sly Saint

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    https://clinicaltrials.gov/ct2/show/study/NCT02426788 I think the results of this RCT are going to be presented at 9th World Congress of Behavioural and Cognitive therapies (Berlin July 17th-20th 2019) see: https://wcbct2019.org/Downloads/abstract-book-1.pdf
  17. Sly Saint

    Anyone any experience with probiotics?

    maybe try reducing the doseage? article in the standard on Symprove here https://www.standard.co.uk/lifestyle/wellness/nutrition-gut-health/symprove-probiotic-for-gut-health-does-it-work-a4126586.html the writer attributes improvements to the probiotic but says "I replaced my can a day...
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