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Indeed, and because it is a very complex analysis :nailbiting: it is therefore much too difficult for mere mortals to understand. Therefore everyone should defer to the authority of the PACE authors on this.. they are the only ones who can fully understand all the nuances of such a large trial...

:(

YES! And this is why they must defend PACE with such vigour. If it falls much more may tumble in the aftermath. And they know it.

Why is he so protected? Who is behind protecting him? Why do no complaints stick? Perhaps all that psychosocial crowd made of Teflon!! :(

Diary is a book of dates coming up that you need to remember (although can also be a written record of what you did - ie personal stories) A journal, to me, is more the lengthy writing type of diary. A Calendar - to me is the 12 sheets of paper that hangs on the wall with pretty pictures of...

Totally understand your frustration/anger @Invisiblewoman at how the situation with your family turned out. I guess it is very difficult, and when so much is individual judgement things can get really tough. I suspect that some people will tend towards reporting anything worrisome (so somebody...

Not sure it is fair to throw blame at schools. They must follow medical advice, and also safeguarding practices - ie there is a duty to report concerns. What medical advisors to schools & social services suggest afterwards is the real nub of the problem. Also there is a serious problem is...

Ice packs were never mentioned to me. Phew. Not hot packs either, but those might have been okay.

I too had some Perrin massages. They were very nice , and relaxing, and the girl was lovely. She seemed as disappointed as I was that it didn’t make one jot of difference.

I’m not sure what he is up to really. There is no real substance to his replies, bar telling people to read papers of his. Pertinent questions are either sidestepped, ignored or derided. Not sure it is worth trying to engage, but I tweeted this, because - well just because. . . The tweet...

I thought this was interesting. I understand that harm was not carefully monitored. Have there not been PACE trial participants stating that no interest was taken when they claimed to be deteriorating?

I think this is a key point in the failings of the PACE authors.

Ha! This is probably the only time they checked with the drop-outs and noticed that they "didn't recover". (Other times, when it suits the them, they assume the dropouts have actually recovered!) These researchers just swing their data whatever way they like. The above is like saying...

I'm pretty certain I've signed every petition going. <Yet my signature doesn't seem to be there either.> Correction: My signature is there - just not in the main UK alphabetical bit, as I apparently entered Co. Down, so when I searched on down there I was after all. The pictures are good!

Oh! I don't like the look of that! So by CFS do they mean CFS/ME as in the CG53 guideline from NICE, or do they mean some other CF symptoms, that they now are siphoning into MUS. And for children!

If so that's good to hear. And perhaps appeals in two different ways at the same time.

The video is okay in my mind. It's motive seems genuine, and although not entirely as I would have done it, I retweeted it this morning after watching it. I didn't notice any Jesus reference (but haven't watched again to look for it). I agree that linking the Whitney plea video with the...

The worry about them being quiet, is that they may feel the scoping document actually gives them sufficient scope to work towards their own ends? Edit, But not being there, I don’t know know how the feel of the day went

It was just such a condescending playground type of reply, I couldn’t let it sit there without saying something. Agree, I don’t expect it to change his views. Yet I hope the comment highlights the distain with which he regards all of us. He keeps trying to come across as Mr...