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And the only real difference between ME and PRS seems to be the "unrefreshing sleep" descriptor. I don't like that one, as it's so hard to really know what they mean. I mean if I miss a nights sleep I'm less well than if I get some sleep, so even if I don't wake up feeling refreshed and well...

So the question wasn't answered! Yes or No?? Doesn't even say plans will depend on out come of NICE review. Hmmmmm

This is interesting. Must see if I can find where to buy the test kit.

Who will be writing the new scope I wonder? And what do other scoping documents look like?

On page 5 this is interesting. It is as though GET and CBT are already written into the scope? Why? Also the getting back to school/work thing? Is that normal in other scopes?

Oh wow... much shorter than I expected! Only 8 pages.

Thank you for finding this - I haven't read a scoping document before so wasn't sure what it would look like. Frustratingly I'm about to take a break away - and won't have much internet connection until late March. Later....

Regarding "lying down to fight", I love that idea.

As I understand it these were the "experts" consulted during the review processes. I think, and perhaps somebody else can clarify on this, that these will not be the same experts used for the creation of the new guideline?

Perhaps - do we know if she has asked anything about ME before? Sometimes I suspect asking a question this way might be a better way to get a direct answer? Time will tell no doubt.

Perhaps she is putting them on the spot? They now should answer either YES or NO. To answer YES would show there is an agenda to increase PACE treatments. To answer NO gives us something to quote if CBT/GET is still pushed and expanded in the years between now and 2020 However I imagine...

Scary stuff @ukxmrv None of it very professional sounding. :(

I assume you are talking about the BSP incoherence there, which is by it's very nature is a smoke and mirrors endeavour. LOL

Wow! So a trial - that is supposed to be scientific and about finding the truth - has "objectives" that are in line with a DWP programme to get people back to work? That's a big admission right there!

How long has Holgate been chair? When is his 5 years up?

I agree. I think in the end you learn your own personal boundaries. I have always has a higher than average HR and lower than average blood pressure. Also Sue Jackson has talked about beta blockers on her blog.

Seems there are a few more doctors talking about this now.

Jim Shannon has now asked this question. The info is in this post in the Questions thread: https://www.s4me.info/threads/uk-house-of-lords-house-of-commons-questions.707/page-4#post-50241

Just to let you know my MP Jim Shannon asked the question about the Yellow cards here: Top of page 11, question no 98: https://publications.parliament.uk/pa/cm/cmquestionbook/noq.pdf Questions tabled on Monday 5 March 2018 I wrote to him a short while ago about this issue - info copied into...

Re the Yellow card thing Keep an eye out this or next week. My own MP, Jim Shannon, has given me the head's up that he will ask this question soon. :)