Interresting thread by brian Earp, author of the study, about its media reception (and distortion):
Or on thread reader (more easy to read than on twitter):
https://threadreaderapp.com/thread/1098369029088178176.html
I undertand you may not be able to say more, but if you can, in what context was that said? Was it an admision by SW of the flaws of PACE or someting else?
@Jonathan Edwards @Brian Hughes @Carolyn Wilshire
Do you know of any other examples of researchers trying to shut down criticism in such a blatant way? Is it something frequent or very rare?
Yes, the lack of personal control is attributed to the patients perception. That is completely stupid.
I have another condition which is far better known than ME. I have a very strong sense of personal control for this condition; whereas I barely have for ME (I do not control anything, exept...
@Action for M.E. Can you please clarifie your position? On one hand you criticize the PACE trial, and then tweet an article promoting the therapies this same trial tested. I am sorry to say I don't see any coherence in your decisions.
Despite having no choice but admitting the limitation of CBT/GET, the BPS proponents never question their necessity, it's because "the therapies are not given soon enough, or not in the correct way, or not enough sessions, or patients aren't motivated", and so on.
That never ceases to astonish...
Yes, I agree, but there seems to be a change. "Brilliant account" to qualify a paper that clearly takes sides against the BPS contrivances, is strong (even though the rest of his statement is, a you say, very vague.)
I may be too optimistic, but maybe he's starting to see things in a different...
For a little bit of background: https://en.wikipedia.org/wiki/David_Colquhoun
"Colquhoun runs the website DC's Improbable Science, which is critical of pseudoscience, particularly alternative medicine, and managerialism"
Interesting: Hilda Bastian was co-founder of the Cochrane Collaboration and its Consumers and Communication Review Group.
https://blogs.plos.org/absolutely-maybe/about-hilda-bastian/
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They nonetheless investigated 3 separate issues.
Conflicts of Interest
Availability of data for secondary analysis
Alterations in the outcome measures used
:sick:
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