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  1. InitialConditions

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    That's true, and they haven't mentioned that (as far as I can tell), but the change is also very small and not significant.
  2. InitialConditions

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    What clearly matters most is the null hypothesis testing i.e. this: "Patients who received CBT were significantly less severely fatigued across follow-up assessments than patients receiving CAU (-8.8, (95% confidence interval (CI)) -11.9 to -5.8); P<0.001), representing a medium Cohen’s d...
  3. InitialConditions

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Note that the confidence interval is sometimes given as +/- twice the standard error, not =/- twice the standard deviation. They may have plotted this, but this would still need correcting to say as much, and it doesn't explain why the error bars at T1 are different lengths despite the same...
  4. InitialConditions

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    I'm just looking at this now. It's all over the place. The lengths of the bars in Fig 2 do not even correspond to the values in Table 3. Happy to work with you on this to get this crap corrected or withdrawn.
  5. InitialConditions

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I would like to know what the patient involvement looks like for this project. I assume this is via BACME.
  6. InitialConditions

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    This plot is objectively worse than those I used to make in GCSE I.T. when I was just learning Excel. Absolutely no care at all. Looks like shit. On a technical note, the error bars are somehow not lined up with the datapoints themselves. I'm not even sure how you'd manage that (maybe it's an...
  7. InitialConditions

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    Not sure who is behind this group, as the website doesn't give any details. Could be Nina Muirhead, but the last I heard she was still in a bad relapse and wasn't able to do much advocacy.
  8. InitialConditions

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Prof Sarah Tyson works in rehabilitation, has done some work with Physios4ME, and recently wrote a letter with David Tuller in response to Saunders et al (2023): “A new paradigm is needed to explain Long COVID.” Dr Mike Horton works in psychometrics and scale development/validation. Dr Peter...
  9. InitialConditions

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    https://meassociation.org.uk/2023/05/me-association-funds-research-for-a-new-clinical-assessment-toolkit-in-nhs-me-cfs-specialist-services/ ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services. "The ME Association is very pleased to announce...
  10. InitialConditions

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A preliminary survey among patients in Switzerland 2023 Tschopp et al

    This looks like a reasonably good paper from first glance, with results as expected. "Patients were included if their reported symptoms fit the criteria of any of the three case-definitions (CCC, ICM or IOM)." Not sure what ICM is?
  11. InitialConditions

    UK Research and Innovation: Researching ME/CFS: highlight notice [First opened 2003]

    @Adrian is it possible to bring this up with MERC/CMRC - perhaps an email can go round to the existing distribution list? (I know MERC is not currently active).
  12. InitialConditions

    UK Research and Innovation: Researching ME/CFS: highlight notice [First opened 2003]

    I just don't think they are getting the proposals. A half decent proposal on one of the PSP priorities probably has a good chance of being funded now. Who/where are these proposals going to come from?
  13. InitialConditions

    UK Research and Innovation: Researching ME/CFS: highlight notice [First opened 2003]

    If I'm not mistaken, this call has been open since 2003 (as Andy has noted), so the ME Association tweet is wrong to suggest applications have just opened on 1 May 2023.
  14. InitialConditions

    Exploring the Genetic Contribution to Oxidative Stress in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2023, Hampilos et al

    Wonder where the full paper is, given this is just the abstract. Perhaps it's not out yet.
  15. InitialConditions

    Long Covid in the media and social media 2023

    I tweeted about this, in reply to a Long Covid Kids Scotland tweet. I'm annoyed that so much history is being erased. You only have to read the article to understand that these two kids (and possibly the adult) almost certainly have ME. Not mentioned once, of course.
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