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His excuse for that will probably be along the lines of not wanting to inflame an already volatile situation. I mean, we wouldn't want the professor to face awkward impertinent questions from his victims about his role in creating that situation in the first place, would we.

:thumbup:

Yep. It might be disheartening and frustrating to have deal with the psycho-political stuff, but it has to be done. Also, from the paper: Expect wilful misinterpretations of that term. Something like 'exercise phobia' might have been better. ––––––––– Psychobehavioural is a better term than...

His own website describes exactly how he wants his work on ME/CFS to be seen, and his bravery in standing up against the hordes of militant anti-psych patients. Let's just say that there are other, less selective and less flattering, interpretations of it...

:rolleyes:

Yep. The bill will come due.

Don't know how long ago he wrote that.

Not to mention whether or not patients looked down the barrel of that psychosomatic gun in a sufficiently manly manner. It's a nice compare and contrast. Leaving aside the question of how accurate that claim is, how is he reliably discriminating the critical issue of which causal pathway...

Phew, what a massive arsehole. :grumpy: I see he is an orthopaedic surgeon, which specialty has [checks notes] absolutely nothing to do with ME/CFS. On the good side, the fact that he is so open and abusive and extremist means he will have precisely zero room for excuses when the time for...

re: BMI effects on ALP My single data point is that my ALP has remained in the same range independent of my BMI (which was ≈22-25 for the first 25 years of ME/CFS, then rising slowly to ≈28-30 over the 15 years or so since).

I have persistently high ALP. It was first noted in my initial diagnostic workup for ME/CFS in 1989, and has been high every single time it was measured since then (including routine annual bloods).

Something I have done since the early days of Covid, when the basic symptom profile was becoming clear, was keep a few packets of the anesthetic type throat lozenges in stock. Have not had to use them yet. But still have them and replace them when past their use-by date.

Plain English should be compulsory in the first year of all undergraduate degrees.

Was 'fibrositis' the term before FM came along?

Nah. They will just twist the results to something like claiming that such findings are secondary consequences of avoiding activity, of the dysregulated psycho-neuro state, etc. Whether they can continue being successful in doing so is another question.

Trust is the most important element of the clinical encounter. Betray that, and it is all over.

Frank Zappa's take on it was: Without deviation from the norm there is no progress.

Chairs with arms can be a problem for me as I discovered years ago that I can relieve back pain to some degree when sitting by keeping my arms folded across my chest (it helps lock the back into a relatively comfortable position, reducing the amount of active effort required to keep it there)...

And some, like me, who can get both effects (though not at the same time, it is either one or the other). Unsurprisingly the amount, but also the type of drink consumed, are also big factors, for me. When people say 'alcohol', in this context that needs to be defined precisely. Do they mean...

Could be measuring the ability and/or willingness to mimic or conform to normative models of 'smartness'.