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Now that is interesting. :geek:

@DMissa Might be worth starting a dedicated thread for that. :thumbup:

Ultimately, the UK altered its NICE guidelines in 2021 to specifically recommend that people with mild to moderate CFS not be offered graded exercise therapy – going directly against the 2015 Cochrane recommendation. Not just NICE going against Cochrane and GET. Getting exercise guidelines for...

:hug:

Any doubts left about how utterly broken and corrupted Cochrane is on ME/CFS?

I will take whatever legit clues we can find, however apparently small their influence may appear to be. They might be the smallest of cracks in understanding but (competent) scientists can use them to lead to a much greater understanding. For example, the Lamb shift in physics. It was a tiny...

The lowering of the threshold is an important factor. –––––– The sometimes extreme loss of function via PEM may or may not be classed as a symptom. But that it happens, and how seriously it affects basic operating capacity in daily life, is a very important thing to get the world to understand.

At this stage there is no possibility left that they are merely incurious, ignorant, or incompetent. That excuse simply does not exist.

Suggested: and can and usually does result in compromised or lost function. Is it worth adding something about the further reduction or loss of function during PEM usually being temporary*, but it could be made semi-permanent/permanent by inappropriate management? *Given no further...

That boat has long since sailed. They have been trying to drag diseases of all kinds into their bailiwick, portraying all medical conditions as having at least a secondary psychosomatic component/overlay. IIRC, that has been Chalder's focus in recent years. All roads lead to psychosomatosis...

:nerd::geek:

That is a relief. I was wondering if it was an all-or-nothing arrangement, or could be done pro-rata. :thumbsup:

You could copy and paste the whole transcript into a plain text file, then upload that to the forum as an attachment.

They are clearly doing everything they can to avoid even properly acknowledging, let alone robustly and honestly testing the obvious alternative. Blame Shifting 101 This The alleged "internalizing psychology".

Raw data, and methodology.

This is my surprised face: :bored:

Poor thermal regulation is a problem. Get an old thick jacket, denim is good. Soak it in water, squeeze it out so it is not dripping too much. Put it on and sit near a fan or breeze. Works well for keeping core temp down, especially if you don't move about much. I removed the sleeves from mine...

I have been wondering if the updates by the Berkely site on the total amount are being unusually delayed. Seems to have been quite stagnant/slow for a few days. Though in the US and UK at least money is even tighter now for the average patient.

And that is the the most generous possible interpretation.

Well, yes. Of course medicos need to communicate clearly. But the problem isn't so much miscommunication, as that what they are communicating, explicitly and implicitly, is unevidenced garbage, or simply disinterest and sometimes outright hostility.