Search results

Getting ME/CFS or LC already puts you in a minority, both on the general health spectrum, and in the way different patient groups are treated within the health system.

I blame the move to the savannah and the discovery of fire. Should have stayed in the trees.

The blindingly obvious one they are all desperately trying to avoid mentioning: adequate material and financial support for patients.

I am less concerned with that, than with the fact that the profession pretends that the stuff they have pulled out of a hat is reliable, useful, and safe, when it quite clearly is no such thing. I don't mind them not knowing, I do mind them pretending that they know and callously inflicting...

The current unjustifiably psych-heavy version of it.

Yep. It is just exploitative cruelty.

This. I have never lost the desire to be active and engage in the world at large. The problem is the complete opposite. Body keeps saying no, and will punish me very hard indeed if I ignore it. More than forty years into this nightmare and having to manage that is the most difficult aspect of...

No controls? All gains on subjective self-report measures. No gains on objective measures. Enough said.

Some people just don't know when to shut up and enjoy their very comfortable and secure lives. Nope, they have to find somebody else to kick to feel better about about their empty inner life. You will notice it is always somebody below them with far less power and wealth to protect against...

an unwillingness to consider more biopsychosocial explanations or treatments, which are increasingly dismissed as ‘medical gaslighting’. Bullshit. It is because the psychosomatic heavy BPS model that has ruled the roost for decades has clearly not delivered, quite the contrary, and its...

Professional life wasters. Our lives. :mad:

Interesting that saline infusion comes in so high for both groups (2nd for ME/CFS, 1st for LC). I would not have predicted that.

Much as I would like a more accurate name, I think we should stick with ME/CFS for now until we have more data and insight into it all.

I wonder how much of this was informed by the disaster that is psychosomatics.

Forget his political baggage (whatever it may be), it is his views on medical science that are the problem.

Since when has being a complete failure ever stopped a government policy?

:sneaky:

I can't believe that it just continues on and on after all that has been exposed about it. That the guilty are able to keep perpetuating the same shitty abuse and lies with a straight face, and go on getting rewarded for it. Nobody with the power to stop it can still claim lack of available...

I'd go further and say they are not only passively failing to deliver the necessary support, they are actively hostile to doing so and working hard to continue denying it all to us. Not all of them, of course. There are always good people in any broken system or institution trying to get it...

re: arbitrary assigning of causation They know what they are doing. One of the most consistent features of psychosomatic studies is the lack of discussion about and accounting for the serious problems and dangers with assigning causation without adequate testing, which they rarely, if ever, do...