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Yep. At least if they were openly mocking and dismissing us, and not even pretending, it would be clear to all. But the pretence of caring and having something useful to offer is vastly more difficult to expose and counteract. Which is why they keep doing it, instead of simply admitting they got...

For which malady the only effective treatment is an immediate and complete Xitterectomy.

That study is the poster child for how fundamentally broken medicine is on this stuff.

It is extraordinary how such blatant biasing is just waved through with no push back.

You will never be taken seriously by the pros with that kind of amateur ignorance. The correct technical term is 'percussive maintenance'. ;)

Or that it gives the psycho-behavioural crowd more time to flood the literature with their usual repetitious methodologically inferior nonsense to pump the numbers, knowing full well how much ground has still to be made up for the biomedical stuff to get a fair run. Also looks like the core of...

Most up-to-date professionals have long since shelved the Lightning Process. Which raises the question of why the hell were they recommending such obvious methodological and ethical garbage in the first place?

I think this is a serious confounder.

I have similar concerns. The reports of association between onset and an apparent infectious event, could be just biased reporting, or the causation could even be the other way around – the immediate onset process (briefly) rendering the patients more susceptible to incidental opportunistic...

Yes, a little Occam's Razor would go a long way here. Just far too many arbitrary assumptions, inferences, extrapolations, etc, required for their model. None of which have stood up to robust scrutiny, let alone the model as a whole. The best fit model is still the simplest and most obvious...

Perrin thinks he has found the answer to every unexplained medical problem. It is gold standard woo.

I smell lawsuits.

It is okay, folks, these patients are in the 'process of recovery'. Give it time. About 30 years or so.

And/or incredibly naive about the psychosomatic club.

This. Far as I can tell the same people are still in the driving seat, and their underlying views and therapeutic prescriptions are fundamentally the same as they ever were. The only difference I can see pre- and post-NICE is slight tweaks to their marketing spiel, and sometimes not even that much.

Seems clear that we are still stuck in the getting basic facts and critiques on the formal public record so nobody can deny they were not raised stage. Given both the history and current situation in mainstream medicine in Australia on ME/CFS I am not in the slightest bit surprised about the...

+1. The longer it takes for a patient to find out about pacing and put it into practice, the longer it is likely to take for the benefits to flow through.

It's bootstrapping all the way down.

It will be meaningless performative drivel to make them feel like they are doing something, and to give them excuses when it doesn't work. And if you don't 'comply' that will be held against you, to justify sacking you from clinics, and to reduce your 'social credit' score.

no naps, They have learned nothing. Except that they can keep getting away with this drivel, and get rewarded for it.