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A useful data set could be the current roll-out of FND clinics in the UK. How many, how much funding they are getting, how loud the advertising for it is, etc. Then compare and contrast to that for ME/CFS post-NICE 2021.

A thread for resources for learning about and understanding statistics, particularly as it applies to medical science. ---------- EDIT (15 Sep 2025): The YouTube channel I originally linked to has changed their name and YT link. The new one is numiqo. Otherwise they are the same channel and...

Yep. If I could get the medical profession to understand only one thing about this stuff it would not be how much damage they are doing to their patients, it is how much damage they are doing to their own credibility.

Irrelevant. Particularly given the distinctive, maybe even unique, feature of PEM in ME/CFS. Lie. So what? Would they make that observation about a patient with a broken leg? Of course not, it would be obvious, circular, and trivial. Reduced activity in response to symptoms is consistent with...

That is exactly what is happening, and they will employ the usual sophistic appeals to cost-cutting and victim blaming to cover their arses. Rinse and repeat.

Perhaps some bright post-grad sociology or criminology student should forensically analyse this ruthless war of attrition on the sick with a view to establishing the actuality. There is enough material in this whole shabby tale to justify a few careers for historians of medicine.

With a blindfold on.

...marked by frustration, misdiagnoses, and dismissal by healthcare providers. Not to mention outright hostility and abuse.

Excellent news. :)

How is this behaviour from both the authors and the BMJ not scientific misconduct, at best, and a particularly cruel example of it?

Honest mistakes don't all point in the same direction. Deliberate manipulation of data and methodology to deliver a predetermined result do.

Jeebus, that is grim reading. :grumpy:

All subjective self-report outcome measures?

They are nothing if not inconsistent. Indeed, it is a hallmark of weak hypotheses and claims.

I also think PEM is the consequence not the cause. Its nature does offer clues to the underlying mechanism, but it is not the mechanism itself. In the same way that excessive urination and thirst is a consequence of diabetes and a clue to its underlying mechanism, but is not the cause of it.

A brazen scam, and only getting more brazen and defiant of reality with every legit criticism made of it. This is what I mean when I call it anti-science. Not pseudo-science, not non-science, but actively anti-science. As matter of deliberate policy and practice they are doing the exact...

+1

evidence-based psychoeducation, rehabilitation, and psychotherapy. What evidence?

"baying for blood" That was a very deliberate choice of phrase. Straight out of Spin Doctoring 101.

This.