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  1. Sean

    Review Long COVID Is Not a Functional Neurologic Disorder 2024 Davenport, Tyson et al

    What’s the big horror about understanding many features of long covid as likely part of a functional disorder? The appalling consequences when the diagnosis, and consequent 'treatment', is wrong. Which is a very good explanation for people's anger and despair and fear at being given...
  2. Sean

    Have you limited your activity more than you needed to?

    For me it is unavoidable. I have to push the boundaries every day just for daily chores and necessities, let alone anything optional/recreational/indulgent.
  3. Sean

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Nice work, @Caroline Struthers. :emoji_slight_smile: Fingers crossed. :emoji_fingers_crossed:
  4. Sean

    News from the USA, United States of America

    I am concerned that LC patients are not understanding how medical science works and why there are no treatments, and that pushing too hard too early for them is unlikely to end well. Medical science has a lot to answer for over their gross long-standing mismanagement, and worse, of LC and...
  5. Sean

    Medical gaslighting as a mechanism for medical trauma: case studies and analysis, 2024, Shapiro & Hayburn

    I broadly agree that the word/concept of trauma is being seriously misused, to the point of becoming meaningless in many situations. But I don't think it is misused in the context of what the medical profession has done to us, and which apparently more than a few of them wish to continue right...
  6. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    https://www.respectfulinsolence.com/2024/11/15/rfk-jr-as-hhs-secretary-will-be-a-catastrophe-for-public-health-and-medical-research/ ––––––––––
  7. Sean

    New Video ME/CFS Scandal Explainer

    Nice work. Thanks. :thumbup: Do agree with the comments about the unhelpfulness of citing the WHO classification as neurological. But it does not alter the basic facts you have presented about how the mishandling of ME/CFS has been completely botched by the psychosomatic club, to the point of...
  8. Sean

    Covid-19 vaccination experiences

    And to have to keep doing it for the same issue, again and again and again....
  9. Sean

    Neurologic Manifestations of LC Disproportionately Affect Young and Middle-Age Adults, 2024, Natasha A. Choudhury MD et al

    'New research shows younger & middle-aged adults have worse long COVID symptoms than older adults' I wonder if that is because older people are less physically active than younger/middle-aged people, and if that is some way is protective, especially in the critical early phase. Maybe older...
  10. Sean

    Review Long COVID – neurological or somatoform disease?, 2024, Tényi, Tényi, Janszky

    The political and economic elite are looking for excuses to cut budgets, and they don't give a flying fig about the human cost. As I have been saying for years, the psychosomatic club could not have got away with their blatant perfidy without ongoing support and protection from the rest of the...
  11. Sean

    Altered Neural Processing of Interoception in Patients With Functional Neurological Disorder: A Task-Based fMRI Study 2024 Sojka et al

    If there was something wrong with your body, that was unexplained and persistently causing you serious troubles (including unpleasant sensations like substantial pain and fatigue and brain fog and unstable haemodynamics, and a whole lot of others), and generally seriously disrupting your life...
  12. Sean

    Comparative effectiveness of [CBT], modafinil, and their combination for treating fatigue in multiple sclerosis (COMBO-MS), 2024, Braley et al

    Further research is needed The most common and reproduced scientific finding of all time.
  13. Sean

    BBC article:Long Fatigue: The exhaustion that lingers after an infection

    Still stuck on the 'fatigue' thing. Plus the relabelling of GET as pacing. Don't expect much better from the BBC, to be honest. They have long been captured by the BPS school, via the SMC.
  14. Sean

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    OVER A QUARTER OF UC MIGRATIONS HAVE FAILED SO FAR :mad: That is real and already difficult human lives these clowns are playing their shitty political bureaucratic games with.
  15. Sean

    Preprint Beyond pain: Using Unsupervised Machine Learning to Identify Phenotypic Clusters of Small Fiber Neuropathy 2024 Murin et al

    Interestingly, one of the main findings of the DECODE genetic study is liver dysfunction (plus insulin resistance and low level inflammation), and liver problems are one of the main suspects for raised ALP levels.
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