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Don't want to be that guy, but there is no way to sugar coat this situation. RFK Jr. has some, er, interesting views on health, and even if somebody else gets the job it is a fairly safe bet that the incoming US admin will not be giving much weight to scientific reality and patient welfare in...

Hossenfelder did a good video on Long Covid a while back.

Which is the problem.

The original PACE paper (2011) did not report on employment and public welfare/private insurance use outcomes. They are reported in the Cost-Effectiveness Analysis paper, published in 2013, and were null and negative, respectively.

What we need above all else from psychs is to get off our backs.

And many of them don't want to.

This.

psychotraumatology Oh boy, yet another marketing term to deal with. :grumpy: This is one of the most persistent features of BPS promoting papers. Not only do the abstracts not accurately reflect what is in the body of the paper and the data, often the abstract contradicts itself. How many...

I think the best general guiding hypothesis we currently have, and the most likely to yield fruitful results, is that the known major systems in the body are probably functioning normally, but are being presented with a major physio-pathological load from an as yet unrecognised source, that is...

OI has been a major feature for me since day one, it was one of the first obvious symptoms (though I did not recognise it as OI to start with, having no previous experience with it or medical knowledge about it, all I knew then was that lying down helped, and sometimes was necessary to avoid...

Or simply the way it is reported is culturally influenced, and not actually reflecting any difference in the underlying problems/symptoms.

I voted no. I have moved between serious and moderate/serious levels, mostly at the latter now days. But nothing I have done has enabled me to improve on that. No amount or pattern of 'exercise', more broadly physical activity, no matter how carefully titrated, has reduced the consequences for...

If a study does not give plots of data that is a big red flag to me. Strongly suggests they have something to hide, like any 'positive' results are just due to a small number of outliers. GET Lite, for 8 hours. FFS. :banghead: Any researcher or clinician with that attitude or employing those...

Yet more evidence in favour of a universal basic income, to dispense with all this poisonous morality-play crap the sick and disabled and poor and plain unlucky have to wear so the rest of society can feel all smug and superior. There is a very interesting thought experiment about this stuff...

@Peter Trewhitt Even from the safety of the couch in my ground level house I can't watch climbing videos any more, especially those solo free-form ones. I break out in a cold sweat and my stomach is doing somersaults. Interestingly it doesn't happen if I am on plane at 20 000 feet and look...

Apart from failing to mention ME, this is how it is done.

As I get older I find myself becoming more wary of heights with edges (cliffs, ladders, etc). It doesn't scare me, but the innate subconsciously sourced warning signs to keep a greater distance from the edges get stronger. Psychopathologisers would say I am developing an irrational fear of...

or other nonspecific symptoms not attributable to a known biomedical disorder despite adequate evaluation, How do they know it is 'adequate'? All they can reasonably say is that current understanding and standard assessment techniques failed to find any significant relevant factors. Which...

Not that I have noticed. Nothing consistent anyway. Sometimes a visual focus problem is one sided. But I don't recall a consistent bias to one side.

I ticked "Aggravation of ME/CFS symptoms soon after", but it is not always soon, it can be delayed. Or at least I don't notice them, maybe because being distracted by the social setting I am in. The general effects are also cumulative. If have just one drink a day it adds up quickly over a week...