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  1. Sean

    The adjunct role of pharmacotherapy in multimodal treatment of paediatric functional neurological disorder 2025 Cummins et al

    The whole FND project really does just get more and more dystopian and cruel, doesn't it. Their lost for power, at whatever cost, is insatiable.
  2. Sean

    Blog: Hilda Bastian "Six Months Later: What Their Response on ME/CFS Tells Us About the Cochrane Collaboration"

    Thank you, @Hilda Bastian, for not letting this go. Every time I start thinking the 'authorities' couldn't get any worse, there they go and prove me wrong. Again. :mad:
  3. Sean

    Watch out for the physio robots! - Guardian piece.

    It is how they avoid taking any responsibility for delivering something actually useful for the patient. 'Just asking questions.'
  4. Sean

    Adaptive pacing : Dr Meg Arroll, psychologist and "international best-selling author"

    'This study provides early evidence that psychological, nutritional and combined techniques for the treatment of ME/CFS may influence symptomatology, fatigue, function and perceived control. However, these results must be viewed with caution as the allocation to groups was not randomised, there...
  5. Sean

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Maybe it is because I grew up in an analog world, long before any of this modern self-surveillance tech was available, but I just can't get into all this stuff. I just can't see the value in it. Maybe heart rate monitoring has some limited value. Maybe. But if we don't have any clear biomarkers...
  6. Sean

    USA: News from the Bateman Horne Center

    With friends like these... :mad:
  7. Sean

    Effectiveness of Lifestyle-Based Approaches for Adults with Multiple Chemical Sensitivity: A Systematic Review, 2025, Martín Pérez

    Background: Multiple Chemical Sensitivity (MCS) is a complex, disabling condition marked by non-specific symptoms in response to low-level chemical exposures. It often leads to substantial impairments in quality of life, psychological health, and daily functioning. Although non-pharmacological...
  8. Sean

    Awakening the sense of the possible: the Symptoms Clinic as liminal affective technology 2025 Greco et al

    Causal complexity No, it's causal opacity that is the problem. The lack of demonstrated causal pathways. It is ignorance, not complexity, that characterises the diagnosis of persistent physical symptoms, including whether the diagnosis itself has any epistemological validity and clinical value.
  9. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    The medical profession, from day one of med school through to at least a decade or so post-graduation, selects ruthlessly for stamina. Those who can't hack it get weeded out early, at least from the clinical stream. Those left on their feet tend to have less direct experience and understanding...
  10. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    From the homeless and mentally ill to us is not a big step. https://www.whitehouse.gov/presidential-actions/2025/07/ending-crime-and-disorder-on-americas-streets/ (Because, as we all know, crime and disorder are never caused by the rich and powerful in society, who are models of probity and...
  11. Sean

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    No argument that the language/terminology needs a good dose of plain English. But I don't have a problem with the basic content.
  12. Sean

    Awakening the sense of the possible: the Symptoms Clinic as liminal affective technology 2025 Greco et al

    Causal complexity characterises persistent physical symptoms (PPS) disproportionate to disease. According to what criteria? I stopped there. Don't need to eat the whole egg to know it is rotten.
  13. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Well, yes, these are very real problems. That is not my concern. You have to factor in who is doing the planning and implementation, whether they are actually genuine about this, and what the tactics they use will be. What happens if they decide that patients like us just need a firm...
  14. Sean

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I think that view is a little uncharitable, @Jonathan Edwards. Overall I think it is a reasonable piece, and a bit more of this kind of stuff might help open the eyes of a few clinicians, and give them some pause for thought in their daily clinical practice. Not everybody in the profession is a...
  15. Sean

    Characterizing Long COVID Symptoms During Early Childhood, 2025, Gross et al.

    And then parents will be accused of being over vigilant, and causing psychosomatic disorders, or worse.
  16. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    This is going to end very badly for US patients.
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