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He has been appointed as a parliamentary champion Discussion here Post in thread 'United Kingdom: Action for ME (AfME) news' https://www.s4me.info/threads/united-kingdom-action-for-me-afme-news.18538/post-645466

Yes I’m glad there have been good “food for thought” points to make people think twice. He is, of course, most remembered for cutting Dr’s pay and unprecedented strikes as a result of his policy. On the face of it he would seem like the enemy of healthcare. As I say, I believe he will be a good...

I wonder whether there’s a Sajid Javid link? Whilst the Conservatives are not thought of as being our natural champions, Jeremy Hunt does not just take on extra responsibility without good reason.

At the risk of being political, whilst he was problematic as Health Secretary as a politician he is very solid, and I actually think this is both interesting and quite good. I’m not really in a position to explain why, so let’s see what happens.

Sadly I think they know all of this and are ok with it. Also if you say this kind of thing you’ll be accused of hysteria

I found here after becoming fed up with the MEA on socials announcing a new study which shows that something something definitely breakthrough etc. never to be hear of again. I would be no use in a cult or MLM, if you keep telling me the Wow Best Ever thing is happening and it keeps “not...

I wish he’d try anything other than being whatever this is.

I’m not going to write what I think as I will just make work for the mods. Suffice to say, he is a sea lion. I’m glad Sarah has called out the grief hijacking and clout chasing. No need to use my feed for self-promotion Paul Garner. I am very well aware of your position and we all know how...

It reminds me of when some Britain First/BNP far right party erected a sign in memorial to a girl who was run over and killed by a guy who wasn’t British. They did it for clout/attention and the girl’s family were disgusted her name and memory was being used to promote something she and they...

Posted to Sarah Boothby’s LinkedIn post regarding the #JusticeforME project she is involved in. Paul just stopping by to let us know he has empathy, NICE [206] is rubbish and a link to Oslo Consortium I have the biggest shudders. My Ick has overflown.

What is he doing posting on her Linkedin! He is something else, using #JusticeforME to promote Oslo Consortium. I will post further on his thread.

Isn’t this just his opinion? Is it in the News section?

I think that what’s going on legally means that language will be very moderate. This isn’t being written as a call to activism, it’s a legal challenge. They clearly want the DHSC to acquiesce rather than go through a judicial review. I can understand their approach. Personally I’m very tempted...

They are mounting legal challenges on areas of the ME Delivery Plan where such challenge is possible, I thought?

I think a meta-analysis of all heart rate studies to see whether Workwell make well-founded claims would be good I think a meta-analysis of “PEM prevention/mgmt studies” would also be useful. The question relating to both, thanks to @Sasha for raising it, is there science behind the assertions...

I can only speak to myself but my heart rate jumps up when I go upright, and stays up until I rest. To get it to do that when lying down I would need to be told something devastating and extremely upsetting. The more I do, the easier it is for my heart rate to go too fast. So if I went out...

Don’t you turn up here with “logic” and “reason” /s

I found this am sure we had a thread on it https://www.robots.ox.ac.uk/~mosb/public/pdf/3535/Aitken%20et%20al.%20-%202024%20-%20Smartphone-based%20monitoring%20of%20heart%20rate%20variability%20and%20resting%20heart%20rate%20predicts%20variability%20in.pdf

I think that if you look at the workwell foundation info, they are claiming that keeping heart rate low leads to less PEM. The document is here and there are only two studies cited. They refer to the 2 day CPET test. https://workwellfoundation.org/wp-content/uploads/2023/01/HRM-Factsheet.pdf I...

I mean it hurts to bend my legs afterwards and they burn and seize and are stiff.