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  1. Sean

    Psychosomatic jaw dysfunction

    A thing of beauty!
  2. Sean

    Activity pacing: moving beyond taking breaks and slowing down (Antcliff et al. 2018)

    It is downright insulting, and a deliberate invalidating of the patient experience.
  3. Sean

    PACE trial data

    We are wandering into some problematic territory here, folks. Unless we have hard evidence of both the connection and any related wrongdoing, then best to back off and leave well alone, IMHO.
  4. Sean

    Activity pacing: moving beyond taking breaks and slowing down (Antcliff et al. 2018)

    Frequent rebranding is a good index of how dodgy the underlying claim is in the first place. The term 'pacing' has been hijacked.
  5. Sean

    PACE trial data

    QMUL & White have no excuses for not providing data. None. :grumpy:
  6. Sean

    Value of Circulating Cytokine Profiling During Submaximal Exercise Testing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2018) Montoya et al.

    Either the patients were high functioning and atypical, or it shows that (at least cardiorespiratory) deconditioning is not a factor in ME/CFS.
  7. Sean

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    In fairness to the Lancet, the recovery paper by PACE was published in Psychological Medicine in 2013. Lancet published the primary PACE paper, in 2011, that made the improvement claim. White PD, et al. Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy...
  8. Sean

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Now this is what real science looks like. :geek: Yes, it is now way past there being any reasonable or acceptable excuse for the medical profession and governments failing to deal with this properly.
  9. Sean

    Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts

    Add me to the list of those not convinced of the benefits of anaerobic exercise for ME patients. It may well be less harmful than aerobic exercise. But that is not necessarily saying much.
  10. Sean

    Wyller: Incorrect information about CFS (ME-debate in journal for Norwegian psychologists)

    I would use words like despicable fraud and cruel beyond belief.
  11. Sean

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    Thus proving yet again just how utterly disconnected these clowns are from human reality.
  12. Sean

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    Agree. This is going to require a major change of attitude and policy at the top of both the medical profession and government in the UK. My biggest concern about the situation in the UK is that Wessely & Co manage to capture Corbyn Labour on this. If that happens then it is over for patients...
  13. Sean

    Is a full recovery possible after cognitive behavioural therapy for chronic fatigue syndrome? Knoop et al., 2007

    Agree. They have developed a general modus operandi that basically involves maximising known experimental confounders for this type of research, making sure objective measures are not used properly or at all, arbitrarily tweaking statistical thresholds to ensure the confounder effect exceeds...
  14. Sean

    Nature: A reboot for chronic fatigue syndrome research

    That stinks. And, IIRC, no correlation between changes in activity levels and self-report. How much disproof do they need?
  15. Sean

    Nature publishes response from Sharpe et al

    We are not rejecting it. We are pointing out that it offers no support for your claim that CBT & GET deliver a meaningful therapeutic benefit.
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