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Yes, but OI is, if I'm not mistaken an umbrella term. The CDC advises, as per my above posting,#10, that there are two types of orthostatic intolerance common in ME: NMH and POTS.

Institute of Medicine/National Academy of Medicine diagnostic criteria for ME/CFS: In addition to a substantial reduction in activity for more than 6 months, PEM, and unrefreshing sleep, either cognitive impairment or orthostatic intolerance are required for a diagnosis...

CDC website below, includes info on POTS for pwME. While this info does say POTS is common in ME, it does not note a percentage affected in this info: https://www.cdc.gov/me-cfs/healthcare-providers/presentation-clinical-course/etiology-pathophysiology.html From CDC website link: "Blood...

Info about POTS from Dysautonomia International website: http://www.dysautonomiainternational.org/page.php?ID=30

It would be a tremendous step forward if physicians became much better acquainted with POTS; how to test and treat it.

Your cognition and physical energy when over extended sounds like mine: unresponsive, heavy limbs, like moving through molasses. About the balance exercises I do, it's taken me several months to wobble less on one foot. At first, it would be mere seconds before I started to really waver...

I too use furniture and the walls to steady myself. I especially need this in the middle of the night. My balance seems worse then. I've been doing exercises standing on one foot at a time for a minute or so each, a couple times per day. It seems to be helping my balance a bit. Once in a...

Early on, and for years, my left foot would sort of slop along when I walked. The ground would come up sooner for that foot. I know this sounds odd. Due to fatigue and weakness, I often shuffled along, and sometimes tripped. I had to make a conscious effort to pick up my feet. I still have to...

Thank you for looking further at this topic, @Jonathan Edwards From ME-pedia. I haven't read all of this page, and the term "anorexia" did put me off for a bit, but this info indicates several causes of inability to eat for pwME, including inability to swallow...

There are of course concerns on both sides. The patient and family who have an intimate knowledge of the heath problems. The level of knowledge and expertise being unspecified in this particular situation. And, the physicians who may, or may not have an in-depth knowledge of ME. The likelihood...

Yes, and what a lovely mouse it is! :)

:laugh:

Agreed. We can never be absolutely certain every possibility causing chronic pain has been checked. Due to stigmatized diseases, and certain groups of unpopular patients, disdain and neglect may interfere with thorough biomedical work ups. The guarantee that thorough testing has been done for...

You're right @rvallee. Pain is an important survival mechanism. There are people who don't feel physical pain. Their's is a rather perilous situation. It's ridiculous really, to ignore chronic pain. It might be trying to tell us something, like: "Dude, those constant terrible headaches mean...

Yep, no boundaries. Good mental picture - the last stand...

Where do the BPS'ers stop? Do they have no boundaries? There is pain with MS. Do they believe CBT and the like can disappear demyelination? What about other devastating, but better understood diseases that include pain? Are they cured with CBT, meditation and the like? :wtf:

Absolutely agreed on all points you mentioned. The complicated nature of ME and LC confuses both patients and doctors. How to convey the symptoms, how to sort out the symptoms, how, and what to investigate. On the other hand, the medical attitude may be quite negative about these patients...

Thanks for this @ladycatlover Yes, public health care experts in Canada adivsed kids would be fine. They broadcast the idea COVID would only adversely affect older people. This gave teens and young adults license to carry on as usual.

Why weren't credentials verified? Maybe they're never verified??? This would make a good movie....

Good point @NelliePledge The Canadian Institute of Health Information found 1 in 17 hospital stays in 2021-2022, (a very stressful time of overwork and illness for health care workers), resulted in error: https://www.cihi.ca/en/patient-harm-in-canadian-hospitals-it-does-happen According to a...