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I think some people need the cutesy cartoons to illustrate the point, pwchronic illnesses have limited energy that gets used up more quickly. Entertaining while educating can be more effective at times. The demo with spoons reminds me of something I read about parents who decided to...

@Jonathan Edwards Page 15 of the Canadian Consensus Criteria Overview has a Symptom Severity and Severity Hierarchy Profile checklist for patients. This gives the patients the opportunity to indicate what their symptoms are and how they're doing. On examination, it can be difficult to use...

Agreed. I think these questionnaires are developed from the assumption, whether acknowledged or not, of short term illness. If we were to graph the progression of ME, it's certainly not linear, nor "up, up and away", as I think others view what should be the trajectory to our recovery.

It is an important day-to-day issue. As we know, this unpredictability wreaks havoc with schedules, relationships, and basic activities of living, such as self-care. Many pwME cannot guarantee without a doubt they can do such and such on any given day.

Exactly.

This!

Very much agree @Trish One of the problems with assessments of pwME is that unreliability of function and PEM are not taken into account. Can the pwME repeat a particular activity today, in an hour, or tomorrow. Physical exertion and performance of activities is often sporadic and unreliable...

Excellent points! Thanks!

Hi @boolybooly Agreed, I debated just using the University's article about the research, and not the research article itself, as for one, the title, including the word "lead" is confusing. And, agreed the researchers have put a lot of work into this study. I added the University's, more...

Note to funding agencies and researchers: please apply this level of funding and investigation to the white matter for persons with ME. White matter changes have been found in pwME. A comparison between pwME and pwLCOVID might be useful. As well, a comparison between those who have had ME for...

Absolutely, me too.

Thanks Peter. I think like many with ME, I find long paragraphs with dense info causes data overload. Not sure if you noted this for yourself, but I know some complex info pwME come across can be difficult to absorb. And, the double or multiple meanings for words can cause stumbling blocks...

Thanks @CRG for the full article.

@Peter Trewhitt Should I laugh? Well I did at what you said. :) The title is a little difficult as the word "lead" usually means the metal, at least to me. But that was indeed the study title as you have ascertained. This was a University of British Columbia study. Hope you're feeling...

2022 Dec 8;209:105484. doi: 10.1016/j.antiviral.2022.105484. Online ahead of print. Discovery of lead natural products for developing pan-SARS-CoV-2 therapeutics Jimena Pérez-Vargas 1, Tirosh Shapira 1, François Jean 21 et al Affiliations PMID: 36503013 PMCID: PMC9729583 DOI...

Hi @Hutan Thanks very much for your analysis. In his latest Health Rising interview, Jarred Younger said he has a number of studies where data needs to be analyzed, but there is a shortage of PhDs to do this work. I don't know if he has replicated this particular study with a larger number of...

Thank you very much @Adam pwme for this! As @Trish said, good video, and short, to-the-point.

In my opinion, the concept FND has no proof. It's just another layer that muddies the waters around legtimate complex chronic diseases.

Thank you for this @duncan. Concerning stats. Not ones that I haven't seen before though in relation to Canada. For years the government myth here was that there was no tick-borne disease in Canada. As if birds that carried ticks never crossed the US border into Canada. And, also the myth...

The standard playbook of pro-psychosomatic arguments. It's only the third year in for this pandemic. There is unquestionable proof of physical dysfunction at the acute stage, and certainly mounting evidence of physiological dysfunction with long COVID. Research on other infections has proven...