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This appears to be an in-depth examination. A question arises, especially as I note the researchers found "similar alterations of neuroinflammation and blood-brain barrier integrity" in the groups studied: why is this not studied more for pwME? It seems ridiculous that more studies of this ilk...

Another speaking problem I've noted with ME, is combining two words into one. I've done this when I have felt more unwell than usual. I understand pwME may also slur their words when they are feeling very unwell. This has happened to me.

Yes, I think changes in voice, amount, and detail given, and other aspects of voice maybe revealing to study in our community. Some are too debilitated in a crash to carry on much of a conversation at all. Also, problems with word retrieval could be noted in such a study.

:laugh: Good point. Well....there are those blatantly obvious medical problems.... But for things Invisible, just take a chill pill, dude. :)

We can extrapolate from this reasoning, that all physical illnesses are caused by personality traits. So why bother with pharmaceutical treatments? Just tell yourself to chill, and it will all be groovy cool. :banghead: :facepalm::banghead:

Neuropsychological testing might reveal something about brain fog. Finding deficiencies might legitimize the term "brain fog".

Why are the 2007 NHS guidelines even available to link to? Shouldn't these be deleted? What's the time limit on retaining incorrect, harmful guidance?

Good this study, and others like it are happening. It's been said many times, but bears repeating IMO, if authentic science had engaged more thoroughly in brain imaging studies of pwME, knowledge and treatment regarding post-viral diseases would be further ahead. ETA: modified to correct brain...

:laugh::thumbup:

Yes, I say, "Oh what now, not another one!"

I often forget what the initials stand for in journal articles, and have to keep referring back to earlier in the article. I can forget in about a minute what I was just going to do, or whether I just did something. I forget some useful or important facts in conversations, almost right away...

The term "anxiety buffers" brought to mind tires cut in half, nailed to a dock, so that when boats come in they hit the buffers, not the dock. That would be rather large to wear: a coat made of half tires, in order that I could rebuff anxiety.

It appears one could come to the conclusion noted in this article, for anyone with an abnormal brain imaging result.

IMO, any trial employing psychological therapies, or viewing issues and items to do with the human psyche, stands a good chance of being fraught with bias. Bias that cannot be satisfactorily controlled for. Humans are not black boxes. There are too many variables to control for in psychological...

From the Invited Letter Rejoinder: "...further work is needed to maintain or maximize effects." From what we've seen with how pwME are treated by disability systems, and health care, governments have little appetite for funding our community or those similar.Therefore, it appears unlikely that...

IMO, to avoid conflict or an uncomfortable scenario, people agree with therapists: "Yes, I feel more positive, yes, my symptoms aren't such a big deal." But, what about objective outcomes?

. I like the way you put it about the government strategy re ME clinics: "a containment strategy", to keep our community "away from any real medical care". Containment, sort of like an oil spill. Toxic. Not wanting our "faulty beliefs" to spread.

@Hutan After some thought on this, I agree that many so-called ME/CFS doctors lead patients to assume they will be successfully treated. But there are exceptions. At first, just regarding a couple of more specifically ME focused mainstream physicians I consulted, I would say my experience...

Exactly what I was thinking. :)

Yes, disappointing that Lenny Jason would be involved in this.