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IMO, EBV needs to be taken more seriously. It seems it's another disease that has been dismissed as of little consequence. Laughed off as the cause of "kissing disease" in teenagers. Recently, it's come to light EBV could play a role in MS. And, many pwME have noted EBV appeared to initiate...

Agreed. We may be seen as withdrawing, but I would say we are withdrawn. Withdrawn by ME. There of course, is in some cases the decision to withdraw, to save one's energy. But sometimes a pwME is too sick to even consider going out and engaging with others. ME: free will versus determinism...

LC is just part and parcel of a normal working adult's life is the same old argument as it was, and still is with ME. How about at least being original with the mud slinging. Everyone feels like you do: puzzling/amazing how some can dismiss serious symptoms, and even research findings that...

Thank you @Jonathan Edwards. The problem I've encountered with 3 various surgeries, is that the medical staff work for quite a while to get any needle into one of my veins. This with surgeons waiting, and the time ticking away. In 2016, it was new to me to be advised to drink juice before the...

I agree. I was told to drink juice first before a surgery that I had 6 years ago. I'm going soon for another surgery, and I was told no food or fluid for 12 hours before the surgery. Just this one issue, one of many, shows how slow and patchy the uptake on new and better medical info is.

My blood draws sound somewhat familiar to yours, @Ravn, but without the clots. They have usually/most often been difficult. First to find a vein that doesn't wiggle away. Then finally to find one that at best, very reluctantly gives up blood. It goes better if I have lots of fluid before the...

That is very interesting @Binkie4 that you feel better with heparin. It's my recall that David Berg's theory recommended heparin as a therapy. Yes, agreed, it is very unfortunate that the research on blood for pwME has had such a stalled history. Frustrating, but not surprising given the...

If I have this right, this article is basically about viscous blood and microclots. It looks like it's coming from a different angle - some different function or process in the body, but David Berg, and before him Dr.Leslie Simpson researched viscous blood many years ago. I recall heparin as a...

I like yoga. And, used to do it. But, it seems to be BPSy. Or, BPS-like. I never delved into it that far, but knew someone who did. They thought ME was BS.

:laugh::thumbup::)

Random bits: Some pwME may have pathology show up on MRI brain scans many years into their disease. These brain scans may, or quite likely will be done for reasons other than ME. Not being a physician, I marvel at how some doctors take risks. For example, a patient presents with symptoms...

FND. This diagnosis is given after a very thorough work up including an MRI brain scan, and other very extensive testing, right? ;):(:banghead:

Thanks for this @Mattie. You can also diagnose POTS with a Holter monitor. The physician asks the patient to keep a diary of activities while wearing the Holter monitor. The patient can record the time at which they start being supine, then a few minutes after the supine position, the time at...

Absolutely agreed @Trish and @Arnie Pye. How about being logical? For groups with less stigma, little to no medical gaslighting, good health, good incomes, nice homes, etc., psychological problems could be more amenable to counseling. Common sense would say with less advantages, and a...

And, Holter monitor testing. This may indicate notable heart rate differences with position of the patient: supine vs upright. While wearing the device, the patient is asked to document movement/activities. Upright versus supine heart rate measurements can be noted by the test interpreter. This...

Testing for POTS doesn't seem to have been included. Nor has tilt table, impedance cardiograph, and maybe 2 Day CPET could be considered. Standard run-of-the-mill cardio testing may not be enough.

Thank you @Trish for your summary of this disturbing, and highly questionable "training". That is to say the very least about this movement. I wonder if anyone forced to sit upright for hours, or jumping around from spot to spot has fainted, or felt very lightheaded, and increasingly ill. I...

Thank you for this posting @Sly Saint, and for the highlights, @Hutan. From the article: "ME/CFS may move from the rare disease category to a wide group of diseases with similar symptoms." The idea of ME moving from a "rare" disease to a larger group of similar diseases is interesting...

Your experience sounds familiar. I've had elevated monocytes, and consistently elevated lymphocytes for several years. Also, active/fresh EBV several times over a number of years. The only conclusion drawn has been a diagnosis of ME. I just listened to Dr. Ron Davis' latest video talk. The...

Exactly @Binkie4, well said. And, this applies to everything I do, even when it's just washing the dishes. Which for myself, and doubtless others with ME is like an athletic event. Apologies for the digression. But, I think Binkie4 has explained this very well. I think publicizing one's...